Guide TO Lanterman Regional Center

 

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guide to lanterman regional center partners in lifelong support

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guide to lanterman regional center table of contents about frank d lanterman regional center 2 ourmissionis 2 ourvisionis 2 families responsibilitiesinthepartnership 11 ­ 13 v gatherinformation 11 ­ 12 v bepreparedandactivelyparticipate .12 v faq:whatshouldiincludeinmy lantermanregionalcenterhomefile .12 v faq:howshouldiorganizemyrecords .12 v seekoutsupport .13 v beactivelyinvolvedinthe lantermancommunity .13 v tipsforformingasuccessful family-professionalpartnership .13 person-centered planning 14 ­ 17 individualprogramplansipp 14 developingaplan 14 v meetingpreparationforfamilies 14 v meetingpreparationfor servicecoordinators 14 whathappensatateammeeting 15 v faq:whyaremychild sservicesandsupports differentfromthosereceivedbyothers 15 v examplesofippgoalsandsupports 16 monitoringandamendingtheipp .17 v faq:whatisactivestatus .17 about the guide to lanterman regional center 2 lanterman sservicecommitment 3 the lanterman developmental disabilities services act .4 ­ 7 knowthehistory 4 otherrelatedorganizations 4 asharedresponsibility theregionalcenterandthefamily 5 responsibilitiesdesignatedto regionalcentersbythelantermanact 5 v excerptfromthelantermanact 5 fundingforlantermanregionalcenter 6 lantermanact sfinancial requirementsofregionalcenters 6 regionalcenterresponsibilityfor purchasingservices 7 v naturalsupports:whatarethey 7 v defininggenericservices 7 working together in partnership 8 ­ 13 partneringwithyourservicecoordinator 8 v howareservicecoordinators assignedtofamilies 8 ­ 9 v faq whathappensifaclientmoves outoflanterman sarea 8 v faq:canapersonlosehis/hereligibility forservices 8 contactingandmeetingyourservicecoordinator 9 v faq:whatshouldidoifi don tknoworcan tremembermy servicecoordinator sname 9 v howtogethelpinanurgentsituation 9 servicecoordinators responsibilities inthepartnership .10 ­ 11 vcircleofsupport:whatisit 10 vfaq:whyisitimportantforyourservice coordinatortovisityouinyourhome 11 vkochlyoungresourcecenter 11 resolving disagreements about services and supports 18 appealingadecision 18 optionsinthefairhearingprocess 18 v voluntaryinformalmeeting 18 v mediation 18 v fairhearing 18 legal rights and responsibilities of people with developmental disabilities 19 clientrightscomplaintprocess 20 receiving quality and effective services and supports 20 regionalcenterdirectservicesandsupports 20 purchasedservicesandsupports 20 v faq:whatcanidotoensure thequalityoftheservicesbeing providedtomyfamilymember 20 faq­frequentlyaskedquestion guide to lanterman

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our mission is to enable people with developmental disabilities to live purposeful lives as active members of their communities about frank d lanterman regional center frankd.lantermanregionalcenterisoneof21regionalcentersinthe stateofcaliforniathattogetherserveover240,000individualswith,orat riskfor,developmentaldisabilitiesandtheirfamilies.establishedin1966as apilotregionalcenter,lantermanisaprivatenon-profitcorporationthat operatesundercontractwiththestateofcaliforniathroughthedepartment ofdevelopmentalservices.itisgovernedbyacommunity-basedboardof directorsthatiscomprisedofindividualswithdevelopmentaldisabilities familymembersandcommunityleaders thecenterservesapproximately8,000childrenandadultsofallagesin anareathatincludeshollywood-wilshire,centrallosangeles,glendale burbank,lacañada-flintridge,lacrescentaandpasadena lantermanworkstogetherinpartnershipwithourclientsandtheirfamilies serviceproviders,andcommunitiestoprovideservicesandsupportsthat addresseachclient suniquestrengthsandneeds,andcreategreaterselfrelianceandindependence our vision is a world where every person is respected and embraced about the guide to lanterman regional center lantermanisdedicatedtohelpingourfamiliesbecomeinformedandeffective membersofthelantermancommunity.throughouttheyears,yourfamily s journeywithlantermanwillbefilledwithchoices,challengesandsuccesses andthis guidetolantermanregionalcenter willhelpyounavigatethe paththatliesahead revisedin2009,basedonfeedbackfromthelantermancommunity,this versionoftheguideiswrittenforfamilieswithchildren3yearsofageand older.theguidefocusesonsixkeyareas v thelantermandevelopmentaldisabilitiesservicesact v workingtogetherinpartnership v person-centeredplanninganditsimplementation v resolvingdisagreementsaboutservicesandsupports v legalrightsandresponsibilities v receivingqualityandeffectiveservicesandsupports theguidealsofeatures tips fromexperiencedfamiliesandservice coordinators,andanswerstofrequentlyaskedquestionsfaqs frank d lanterman regional center

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lanterman s service commitment we are committed to · treat people with courtesy and respect listening attentively to their concerns ­ with understanding and without judgment · be sensitive to and acknowledge cultural differences · encourage clients and families to make their own informed choices and we respect and support their decisions · respond to requests as quickly as possible and explain any delays · if we make a mistake or misunderstand your request we respond swiftly to correct the situation · respond promptly and constructively to your concerns if you feel we have not been responsive or have caused you to be dissatisfied with lanterman we will forward your complaint to the appropriate authority to respond quickly and constructively to your concerns · come to meetings and appointments promptly prepared with the necessary information · explain the regional center service delivery system as well as what lanterman s role and relationships are with the many other agencies and service delivery systems so that it makes sense and you feel able to access these different resources · share all the information we have about the various service options available offering our recommendations in a constructive manner we will be honest about what we are able to do and what we are not able to do if we cannot help you we try to find someone who can · respect your right to privacy and hold in confidence all information obtained in the course of professional service · solicit your ideas and suggestions about how we can improve our services · stay current in our field and maintain professional standards guide to lanterman

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the lanterman developmental disabilities services act know the history intheyearsprecedingtheadventoftheregionalcentersystem theonlyoptionforgovernment-fundedservicesforpeoplewith developmentaldisabilitieswasthestateinstitution.thetypical advicegiventoparentsofchildrenwithdevelopmentaldisabilities wastoplacetheirchildinaninstitutionand getonwith their lives.thisresultedintheseindividualsandtheirfamilieslivingin ashadowworldofisolationanddenial,virtuallyinvisibletothe largersociety­withlittlehopeofafuture inthe1950s,committedparentsincaliforniabandedtogether tocreatetheirownservicesinthecommunity,andbythe early1960s,widespreadparentaldissatisfactionledthemto beginagitatingforsocialchangethroughlegislation.these parents,alongwiththeprofessionalsworkingwiththemin thecommunity,foundasympatheticearinassemblymember frankd.lanterman.driveninpartbynationaleventsandin partbyacommittedgroupoffearlessparents,professionalsand legislators,thisspiritofchangegatheredmomentum thispioneeringgroupchallengedthestateoveritstreatmentof peoplewithdevelopmentaldisabilitiesandproposedcreatinga networkofregionalcommunity-basedagenciestoprovideservices ratherthanbuildingmoreinstitutions.legislationpassedin1965 authorizedtheestablishmentoftwopilotregionalcenters,onein losangelesandoneinsanfrancisco.thecenterswereintended tocallattentiontotheunmetneedsofpeoplewithmental retardation,facilitatethedevelopmentofservices,maintain records,providesystematicdiagnosisandfollow-up,andassist statehospitalsinmovingtheirresidentstothecommunity.in january1966,theregionalcenterforthelosangelesareaopened itsdoorsatchildrenshospitallosangeles a1969reportconcludedthatthepilotregionalcenterswere successfulandthatthemodelshouldbeexpandedstatewide buoyedbythisreport,assemblymemberlantermanintroduced ab225,thelantermanmentalretardationservicesactof 1969,whichextendedtheregionalcenternetworkofservices throughoutcaliforniaandestablishedareaboardsforplanning andmonitoringservices.fouryearslater,ab846,alsoauthored byassemblymemberlanterman,extendedtheregionalcenter mandatetootherdevelopmentaldisabilities,includingcerebral palsy,epilepsy,autismandotherconditionscloselyrelatedto mentalretardation.thenameoftheactwasalsoamendedto thelantermandevelopmentaldisabilitiesservicesact.this legislationiscommonlyknownasthelantermanact theactionsofthissmallandpersistentgroupofparents professionalsandlegislatorssparkedarevolutionandcreatedthe regionalcentersystemthatweknowtoday other related organizations visitthewebsitesoftheotherstateagenciesandorganizations mentionedinthelantermanacttolearnmoreabouttheirrole intheregionalcentersystem v departmentofdevelopmentalservices­www.dds.ca.gov v statecouncilondevelopmentaldisabilities­ www.scdd.ca.gov v areaboard10­www.areaboard10.org v disabilityrightscaliforniaformerlyprotectionand advocacy,inc ­www.disabilityrightsca.org frank d lanterman regional center

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a shared responsibility the regional center and the family thelantermanactestablishedanentitlementtoservicesandsupportsfor personswithadevelopmentaldisabilityandgavethestatearesponsibilityto provideservicesandsupports.atthesametime,thestatedoesnotbearthesole responsibility.familiesarealsoresponsibleforhelpingtheirchildrenachievethe highestlevelofself-sufficiencypossible,aswellashelpingthemleadproductive independentandsatisfyinglivesaspartofthecommunitiesinwhichtheylive thelantermanactalsorequiresregionalcenterstoensurethatgeneric resourcesareaccessedwhenpurchasingservicesandsupports,andtotakeinto accountthefamily sresponsibilityforprovidingsimilarservicesandsupportsto aminorchildwithoutdisabilities lantermanregionalcenterisdesignatedasthecentralcoordinatingagency inacommunitynetworkofservicesandsupportsthatisbothlargeand complex.itworksinpartnershipwithfamiliestoensurethattheirchildren receivetheservicesandsupportsnecessarytoachievethegoalsoftheir individualprogramplan excerpt from the lanterman act section 0 of the lanterman act states the state of california accepts a responsibility for persons with developmental disabilities and an obligation to them which it must discharge affecting hundreds of thousands of children and adults directly and having an important impact on the lives of their families neighbors and whole communities developmental disabilities present social medical economic and legal problems of extreme importance an entire copy of the lanterman act is available online at www.dds.ca.gov or for borrowing through lanterman s koch lyoung resource center responsibilities designated to regional centers by the lanterman act thelantermanactassignstoregionalcenterstheresponsibilityforprovidinga rangeofdirectservicesandsupportstoclientsandtheirfamilies.theseinclude v assessmentandevaluationtodetermineeligibilityforregional centerservices v developmentofanindividualprogramplanipp throughaperson centeredplanningprocess v coordinationofservicesandsupportstohelpclientsandtheirfamilies achievethedesiredoutcomesspecifiedintheiripp v assistanceinfindingandusingcommunityandotherresources v supportandfacilitationoftheinclusionandintegrationofchildrenand adultswithdevelopmentaldisabilitieswiththeirnon-disabledpeers v outreachactivitiestoidentifypersonswhomayneedregional centerservices v developmentofinnovativeandcost-effectiveservicesandsupportsthatare flexible,individualizedandpromotecommunityintegration toclientsandtheirfamilies developmentaldisabilities v assuranceofthequalityandeffectivenessofservicesandsupportsprovided v advocacytoprotectthelegal,civilandservicerightsofpeoplewith v information,referralandsupport guide to lanterman

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funding for lanterman regional center lantermanregionalcenterisfundedthroughacombination ofstategeneralfundtaxdollarsandfederalmedicaidfunds onjuly1,thestartofeachfiscalyear,wereceivefromthe stateanewcontractwithabudgetthatisdeterminedbythe legislatureduringtheannualbudgetprocess.ourbudgetis dividedintotwoparts­operationsandpurchaseofservices theoperationsportionofthebudgetfundsdirectservicesthat ourstaffprovide.theseservicesincludeservicecoordination intakeandassessment,clinicalservices,advocacy,andquality assurance.theyalsocoverothercostsofoperatingthecenter suchasrent,telephoneandsupplies purchaseofservicesfundsareusedtopurchaseservicesand supportsforclientsfromourcommunityserviceprovider networkwhennoothersourceoffundingisavailable therearemanyclientneedsinthelantermancommunitythat cannotbemetthroughtheregularstatebudget.tohelpaddress theseneeds,thecenterengagesinfundraisingactivities,pursues grantopportunities,anddevelopscommunitypartnershipsto innovativelymeettheseneedsandchallenges lanterman act s financial requirements of regional centers thelantermanactrequiresregionalcenterstoberesponsible andaccountablestewardsofthefundswereceive.weare requiredto v livewithinourbudgeteachyear v ensurethattheregionalcenterdoesnotpayforservicesand supportsthatshouldbeprovidedbyotheragencies,suchas localschooldistricts,medi-calandsocialsecurity v secureservicesfromqualifiedserviceproviders v onlycontinuepurchasingserviceswherethereisreasonable progressinachievingtheippgoalsandagreementbetween thefamilyandtheregionalcenterthattheservicesshouldbe continued achievedesiredoutcomesidentifiedintheipp developnaturalsupports v locateordevelopinnovativeandcost-effectivewaysto v helpfamiliesaccesstypicalcommunityresourcesand v developandpurchasespecializedservicesonlyifgeneric servicesandsupports,ortypicalcommunityresources,do notmeettheclient sneedsasspecifiedinhisorheripp frank d lanterman regional center

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natural supports what are they excerpt from the department of developmental services publication how to develop natural supports regional center responsibility for purchasing services regionalcentersareresponsibleforhelpingfamiliesidentifyandaccessthe servicesandsupportsnecessarytoachievethedesiredoutcomesspecifiedin theirfamilymember sipp.thelantermanactinstructsregionalcenterstodo thesethingsinwaysthatare innovativeandeconomical oneofthemostcost-effectivewaysofmeetingserviceandsupportneedsis throughtheuseofnaturalsupportsandgenericserviceswhenevertheyare availableandappropriatetotheclient sneeds.servicecoordinatorsworkwith familiestoinvestigateandexhaustallavailablenaturalandgenericoptions.for certainservicesforchildren,thelantermanactalsorequiresfamiliestoshare inthecost,andwhenavailable,toaccessprivateinsurance.toensurethatthis isnotabarrierforfamilies,thestatehasdevelopedcost-sharingguidelinesthat aredeterminedbythefamilyincome ifoneormoreofthedesiredoutcomesinaperson sippcannotbeachieved usingpersonalresources,naturalsupportsorgenericservices,aservice coordinatormayrequestauthorizationforfundingfromtheregionalcenter topurchasethenecessaryservicesorsupports.allpurchasesmustbeconsistent withthecenter sservicestandards,whichareapprovedbyourboardof directorsandthedepartmentofdevelopmentalservices whenthecenterauthorizesfundingforaservicefromacommunityservice provider,theproviderreceivesawrittenauthorizationbeforeservicesbegin.the centeronlyreimbursesprovidersforservicesthatareincludedintheippand deliveredafteranauthorizationisreceived inextraordinarycircumstances,thecentermaymakeapurchasethatisan exception toaservicestandard.arequestforanexceptionmustbereviewed andapprovedbythecenter sexecutivedirectororhisorherdesignee fundingforservicesandsupportsisreviewedatthetimeanippisdeveloped orreviewed.ifthereisevidencethattheservicesandsupportsarehelping achieveormaintainthedesiredoutcomesoutlinedintheipp,fundingmaybe continued.inallcases,beforefundingisinitiatedorcontinued,theipporan ippamendmentmustbesigned all of lanterman s service standards can be viewed on our web site at www.lanterman.org as defined in the lanterman developmental disabilities services act section of the welfare and institution code part e natural supports means personal associations and relationships typically developed in the community that enhance the quality and security of life for people including but not limited to family relationships friendships reflecting the diversity of the neighborhood and the community association with fellow students or employees in regular classrooms and work places and associations developed though participation in clubs organizations and other civic activities what does natural supports really mean to answer this question it may be easier to look at yourself and think about all the people in your life ­ friends family co-workers relationships with these people are your natural supports who has been instrumental in [crucial points in your life or whom can you count on for help the entire publication can be accessed on the department of developmental services web site at www.dds.ca.gov defining generic services there are many public agencies that are legally required to provide services to individuals with developmental disabilities we refer to these agencies as generic agencies and to the services and supports they provide as generic services each of these agencies has its own guidelines for eligibility and services generic agencies include medi-cal public schools county mental health agencies and the social security program guide to lanterman

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faqs what happens if a client moves out of lanterman s area ifyoumovefromlanterman sservice areatoanotherlocationincalifornia servicesandsupportswillbeprovided toyoubytheregionalcenterthatserves yournewneighborhood.lanterman willtransferyourrecordstothenew regionalcenter.accordingtothe lantermanact whenevera[client transfersfromoneregionalcenter catchmentareatoanother,theleveland typesofservicesandsupportsspecified inthe[client s]individualprogram planshallbeauthorizedandsecured,if available,pendingthedevelopmentof anewindividualprogramplanforthe [client iftheseservicesandsupports donotexist,theregionalcentershall conveneameetingtodevelopanew programplanwithin30days.priorto approvalofthenewindividualprogram plan,theregionalcentershallprovide alternativeservicesandsupportsthat bestmeettheindividualprogram planobjectivesintheleastrestrictive setting section4643.5c ifyouareplanningonmovingoutof california,yourservicecoordinator andthekochlyoungresourcecenter canhelpyoucontacttheappropriate developmentalservicesagencyinyour newstateandlocateotherrelated resources.andwithyourwritten consent,wecantransferyourrecordsto thatstate sagency working together in partnership thelantermancommunityincludesourclientsandtheirfamilies,service providers,staffandthebroadercommunityinourgeographicarea,including otherlocalandstateagencies.inorderforthispartnershiptobesuccessful allcommunitymembersmustactivelyparticipateandworkcollaboratively whilerespectingandrecognizingindividualcontributions,roles,strengthsand experiences.astheprimarysourceofcareandsupportforthepersonwitha disability,thefamilyoccupiesaleadershiproleinthispartnership partnering with your service coordinator oneofthemostimportantpartnershipsistherelationshipbetweenaservice coordinatorandafamily.yourservicecoordinatorisyourprimarycontactand partneratlanterman.heorsheisaprofessionalwithexperienceinthearea ofdevelopmentaldisabilitiesandknowledgeaboutresources,supportsand services.yourservicecoordinatorwillworkwithyouonthedevelopmentand implementationofanipp,whichservesasaroadmaptowardachievementof desiredoutcomes.heorshecanalsoprovideinformationandguidancetohelp youmakeinformeddecisionsabouttheplans,servicesandsupportsnecessary toaccomplishgoalsidentifiedintheipp how are service coordinators assigned to families servicecoordinatorsareorganizedintoteamsservingspecificagegroupsand geographicareas.wheneverpossible,theyarealsomatchedwithfamiliesbased onprimarylanguageneeds everyeffortismadetoensurestabilityandcontinuityforfamilieswiththeir assignedservicecoordinator.sincelantermanisorganizedtosupportclients andtheirfamiliesaroundagesandgeographiclocations,however,allfamilies experienceanoccasionalchangeinservicecoordinatorassociatedwithspecific transitions.thesetransitionsare v whenyourchildturns3,ifheorshecontinuestobeeligibleforregional centerservices,atransitionwilloccurfromearlyinterventiontooneofour schoolageunits v aroundage14,yourchildwillagaintransitionfromschoolagetooneof ourongoingunits v ifyourfamilymovesfromonegeographicareatoanotherbutisstillwithin lanterman sservicearea,yourfamilymemberwillbetransferredtotheteam servingyournewarea v ifyourservicecoordinatorleaveslantermanortakesanewpositionwithin thecenteryouwillbeassignedanewservicecoordinator can a person lose his/her eligibility for services thelantermanactstatesthataperson whoisdeterminedbyanyregional centertohaveadevelopmentaldisability shallremaineligibleforservicesfrom regionalcenters,unlessaregional center,followingacomprehensive reassessment,concludesthattheoriginal determinationthattheindividualhas adevelopmentaldisabilityisclearly erroneous section4643.5b frank d lanterman regional center

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v everyyear,youwillbegivenanopportunitytoformally evaluateyourservicecoordinator sperformance.aspart ofthisevaluation,youwillbeaskedwhetheryouwishto continueworkingwithhimorherforthecomingyear atanytime,youshouldcontacttheregionalmanagerfor theunitthatservesyouanddiscussyourconcerns.heor shemaytrytohelpyouresolvetheissuesormayassigna differentservicecoordinator arejustnotagoodmatch,theservicecoordinatormayalso requestachange v thephonenumberwheretheservicecoordinator canreachyou v goodtimestoreturnyourcall v thereasonforyourcall v ifyoubecomedissatisfiedwithyourservicecoordinator v insomecircumstances,ifyouandyourservicecoordinator servicecoordinatorsmakeeveryefforttoreturncallsbythe endofthenextbusinessday.iftheyarenotabletoreturncalls withinthistimeperiod,forreasonssuchasillnessorvacation theiroutgoingmessagewillcontaininstructionsaboutwhomto contactintheirabsence sinceservicecoordinatorsareoftenawayfromtheoffice,it s besttoscheduleanappointmentinadvanceifyouwishtohave aface-to-facevisit.thesemeetingstypicallytakeplaceatthe family sresidence,buttheycanalsobeheldattheregional centeroranothermutuallyagreeduponlocation duringthesetimesoftransition,someonewillalwaysbeavailable tohelpensurethatyourserviceneedsaremetuntilyouare assignedanewservicecoordinator.ifyouneedhelpduringa transitionperiod,calltheunitthatservesyourfamilymember andasktospeaktotheofficeroftheday how to get help in an urgent situation duringregularbusinesshours ifanurgentbutnotlifethreateningsituationarisesduring regularbusinesshours,mondaytofridayfrom8a.m.to 5p.m suchas v youareattheemergencyroomandaphysicianis contacting and meeting your service coordinator yourservicecoordinatorcanbecontactedbytelephone,e-mail andregularmail recommendingpsychiatrichospitalization faq what should i do if i don t know or can t remember my service coordinator s name ifyoudon tknoworcan trememberyourservice coordinator sname,calllanterman smainphonenumber at213.383.1300andasktheoperatortotransferyouto thesecretaryfortheunitthathasbeenservingyou.ifyou don tknowtheunit,lettheoperatorknowtheclient s ageandwhatcityheorshelivesin,andtheoperatorwill transferyoutotheappropriateunit.lantermantakes ourresponsibilitytoprotecttheprivacyofourclients andtheirfamiliesveryseriously,andyoumaybeasked questionstoconfirmyouridentity v therearebehavioral-relatedissuesthreateningthehealthand safetyoftheclientorthoseindividualsprovidingcareforthe client,or v yourfamilymemberismissing youshould 1 callyourservicecoordinator 2 ifyougethisorhervoicemail,andifyoursituationcannot wait,press 0 andyouwillbeconnectedtosomeonewho canhelpyou eachservicecoordinationunithasanofficerofthedaytohelp ifanurgentmatterarisesthatrequiressame-dayattention afterbusinesshours/weekend ifanurgentsituationarisesafterbusinesshoursoronthe weekend,andyouneedimmediatehelpfromtheregional center,youshould 1 calllanterman smainphonenumber,213.383.1300,to accessouremergencyresponsesystem 2 youwillbeaskedtoleaveavoicemailmessageandthe individualwhois on-call willbenotifiedandwillcallyou backwithinonehour theon-callresponsibilityisrotatedamongtheclientand familyservicesdivisionleadershipstaff,soaknowledgeable personisalwaysavailabletohelpwithurgentsituationsoutside ofregularbusinesshours guide to lanterman servicecoordinatorsspendmuchoftheirtimeoutoftheoffice meetingwithclientsandfamilies.theychecktheirvoicemail messagesregularly,sowhenyoucallbesuretoleaveamessage voicemailsarethebestandmosteffectivewaytocommunicate withyourservicecoordinatoraboutregularbusinessandnonemergencyissuesifyoucannotcontacthimorherdirectly whenyouleaveamessageforyourservicecoordinator,besure toinclude v yourfullname v theclient sname

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service coordinators responsibilities in the partnership servicecoordinatorsareresponsibleforhelpingclientsandtheirfamiliesaccess informationandmakedecisionsandchoicesaboutdesiredoutcomes.theyalso helpthemdevelopplansforworkingtowardtheseoutcomesandforidentifying andaccessingtheservicesandsupportsnecessarytoachievethem.thisprocess iswhatwerefertoasservicecoordination servicecoordinatorsassistclientsandtheirfamiliesindevelopingplansand makingchoicesby v encouragingthemtoidentifyanddevelopacircleofsupport v partneringwiththemandtheircircleofsupporttodevelopanipp v periodicallyreviewingwiththeclientandfamilytheclient sprogressand circle of support what is it according to the lanterman act circle of support means a committed group of community members who may include family members meeting regularly with an individual with developmental disabilities in order to share experiences promote autonomy and community involvement and assist the individual in establishing and maintaining natural supports a circle of support generally includes a plurality of members who neither provide nor receive services or supports for persons with developmental disabilities and who do not receive payment for participation in the circle of support [section f in other words a circle of support is a group of people who play an important role in the life of a person with a developmental disability by providing support in different ways during their day-today interactions with that person anyone that plays a supportive role in the person s life is part of his or her circle of support this could be a family member a neighbor or a school or work friend discussinganyneededchangestotheipp v reviewingthequalityandeffectivenessoftheservicesandsupports v ifnecessary,helpingtheclientandfamilyprepareforanindividualized educationprogramiepmeeting theinvitationofthefamily v iftheservicecoordinator sschedulepermits,attendingtheiepmeetingat servicecoordinatorsfacilitateaccesstoservicesandsupportsinthe communityby v helpingtoidentifynaturalsupportsinthecommunity v informingclientsandfamiliesaboutcost-effectivecommunityresources andservices v helpingfamiliesobtainservicesandsupportsfromlanterman sservice providernetwork 0 frank d lanterman regional center

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servicecoordinatorsprovidesupportby v listeningtoclients andfamilies concernsandrespecting servicecoordinatorshelpclientsandfamiliesaccessinformation anddevelopnewskillsandknowledgeby v informingthemabouttrainingandeducational theiropinions v activelydiscussingoptionsandchoices,andmaintaining openlinesofcommunication opportunitiesprovidedbylantermanorothercommunity organizations v advocatingonbehalfofclientswithagenciesandprograms v referringthemtothekochlyoungresourcecenter v consultingontheirbehalfwithspecialistsatlantermanand suchastheschooldistrict,socialsecurityandmedi-cal v assistingintimesofcrisisoremergency v investigatingproblems,complaintsandsituationsof inthecommunity potentialabuse faq why is it important for my service coordinator to visit me in my home itisimportantforservicecoordinatorstovisitclientsand theirfamiliesintheirhomesratherthananothermore publicsetting.manyoftheissuesdiscussedatameeting arepersonalandprivateanditisdifficulttomaintaina desiredlevelofprivacyandconfidentialitywhenthese mattersarediscussedinasettingsuchasacoffeeshop orrestaurant.additionally,itisessentialforservice coordinatorstobefamiliarwithaclient shomesituation sotheycanmaketheappropriaterecommendations especiallyinregardstoin-homesupports.themorethey understandandknowaboutyourfamily,thebetterthey areabletosupportyou families responsibilities in the partnership whenfamiliespartnerwithlantermanandbecomeactive andinformedparticipants,theyarebetterabletoaccessthe resources,servicesandsupportsnecessarytoachievetheir desiredoutcomes gather information we veallheard knowledgeispower andhavingaccurate timelyinformationhelpsfamiliesmakebetterchoicesand decisions.therearemanywaysforfamiliestobecomebetter informed v utilizethekochlyoungresourcecenter v participateinparentgroups,trainingopportunitiesand workshopsprovidedbylantermanandothercommunity organizations kochlyoung resource center the kochlyoung resource center provides information education and support for people with developmental disabilities families of individuals with special needs lanterman staff professionals and the general community the resource center offers a number of services including · a help desk and helpline 00 x 00 or kyrc@lanterman.org that link people to community resources related to developmental disabilities provide information and referral and do research for unique needs · a multimedia multilingual library collection with thousands of disability-related materials that is searchable online at http library.lanterman.org · a network of care that includes social and recreational resources health-related resources and many other resource categories www.lanterman.networkofcare.org · support groups including age disability and geographic-specific groups · a peer support partner program that offers one-onone family support from trained and experienced family members www.lanterman.org/psm · education and training opportunities and · disability-specific information in addition to the library and the help desk the resource center also · maintains a computer training lab · oversees lanterman s assistive technology project that offers assistive technology consultations and individual training conducts workshops lends equipment and provides related information guide to lanterman

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v networkwithotherlantermanfamilies v learnmoreaboutthelantermancommunitybyreading faqs what should i include in my lanterman regional center home file · basicinformationaboutyouoryourfamilymember,such asspecialneedsormedicalconditions,sothatotherscan provideconsistentcare · alistwithcontactinformationofallthepeople,agencies programsandorganizationsthatareprovidingservicesto youoryourfamilymember · acopyofthecurrentindividualprogramplanand,if applicable,individualizededucationprogram · copiesofreportsfromindependentassessments · copiesofallwrittencommunicationincluding handwrittentoandfromallprofessionalsworkingwith youoryourfamilymember · alistofmedicationsbeingtakenathome,schoolorwork asauthorizedbythephysician.includethemedication name,dosage,timeofdaytaken,andtheprescription numberandpharmacy.alsonotechangesindosageand reactionstothechangethatyouhaveobserved · yournotesdatedaboutmeetingsorphoneconversations withregionalcenterstaff,physiciansandother professionalsworkingwithyourfamilymember.also,be suretoincludethenameofthepersonwithwhomyou spokeormet lanterman snewsletter viewpoint www.lanterman.org index.php/viewpoint andbyvisitingourwebsite www.lanterman.organdournetworkofcare www.lanterman.networkofcare.org be prepared and actively participate familieshavealeadershiproleinplanning,andresponsibilities ofthatroleinclude v establishingandmaintaininganeffectiveworkingrelationship withyourservicecoordinator.youcandothisby Ñ communicatingyourneedsandconcerns Ñ helpingyourservicecoordinatorcompletetheclient developmentevaluationreportcderandhealth statusreviewannually Ñ reviewingthequalityandeffectivenessoftheservicesand supportsyourfamilymemberreceives Ñ sharingbothgoodandbadexperiences,including problemsthatariseandservicesandsupportswithwhich youhavebeensatisfied Ñ workingtogethertoidentifyanddevelopacircleof support v preparingformeetingsbyresearchingoptionsandcollecting information v thinkingaboutgoals,plans,andservicesandsupportsthat youwouldliketodiscussatthemeeting v partneringwiththeprofessionalsprovidingservicesand how should i organize my records itishelpfultodividerecordsintosubcategories,suchas health,educationandipp,andorganizethembydatewith themostrecentontop italsohelpstomaintainanotebookcontainingcopiesofyour mostrecentrecordsthatyoucantakewithyoutomeetingsand appointments.thisnotebookshouldinclude,ataminimum twoyearsofreports,evaluationsandprogramplans learningyourroleinhelpingyourchildbuildskillsathome andinthecommunity v askingquestionswhensomethingisnotclear v keepingaccuraterecords v followingupontheitemsforwhichyouhaveresponsibility v understandingthebenefitsandoutcomesthatmaycome withthechoicesanddecisionsyoumake frank d lanterman regional center

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seek out support rememberthatyouarenotalone.manyotherparentsofspecial needschildrenshareyourexperiencesandfeelings.hereare sometipsandsuggestionsthatwehavegatheredfromsomeof ourlantermanfamilies v nevergiveuphope v seekoutpeersupportfromotherfamilieswhohave v participateinregionalcenterworkgroups,committeesand possiblytheboardofdirectors v becomeanadvocateforyourfamilybycalling,visitingand writinglegislatorsandgovernmentofficialsonthelocal stateandfederallevelstoinformtheseleadersaboutissues importanttoourcommunity beenthere v identifyyourownnaturalsupportsystem­family,friends religiousorganizations,community v joinasupportgroupthatmeetsyourneeds v taketimeforyourself v keepyourexpectationshighandsetchallenging,yetrealistic goalsforyourchild be actively involved in the lanterman community therearemanyopportunitiestogetinvolvedandactively partnerwithlantermanregionalcenter v becomeasupportgroupfacilitatororapeersupportpartner v seekoutopportunitiestopartnerwithlantermaninthe developmentofplans,policies,legislationandstrategiesfor servicedelivery tips for forming a successful family-professional partnership · sign and return your individual program plan documents amendments and agreements promptly your signature on these documents is necessary for the funding authorization process for the services and supports outlined in the ipp · plan ahead the funding process takes time so give your service coordinator ample time to request services service coordinators must follow an approval process and may have to research specific funding criteria on average the approval process takes about two weeks · request timely and up-to-date progress reports and evaluations for yourself from anyone working with your child whether the service or support is funded by lanterman or you are paying for it yourself be sure to maintain a file of these documents and to share them with your service coordinator he or she will keep a copy of them on file since they will be important when a renewal or reauthorization of funding is requested · provide your service coordinator with a copy of your child s individualized education program schools cannot release the iep to regional centers so families are a service coordinator s only source of this document · keep your service coordinator up to date about what s going on with your family let him or her know about hospitalizations suspensions from school if you have a family crisis or if you suspect abuse · if you need assistance from your service coordinator for a meeting such as the iep let your service coordinator know as soon as you are notified the more notice you give your service coordinator the better he or she will be able to support you and remember your service coordinator may only attend the meeting at your invitation · be proactive ­ do your own research and if there s a resource or training that you or your family member are interested in give information about it to your service coordinator guide to lanterman

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