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1 spring 2012 celi-yak online is better than ever page 4 celi-yak is published quarterly by the manitoba chapter canadian celiac association

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4 celi-yak online is better than ever advantages of electronic journals speed articles can be put on the web as soon as they are we are pleased to announce that celi­yak online has ready without having to wait maybe months for a space in a journal issue improved immensely inexpensive the newsletter committee has long been aware of the a huge saving over print costs can be realized and readability issue of celi-yak online ever since we distribution costs are almost non-existent published the online issue members sign up for the online issue our flip page host youblisher has greatly improved celi-yak will be delivered right to your email the presentation of publications by providing several inbox long before the print version gets deliv tools which allow readers to view and work with the ered publications easier than previously the available fea read back issues of celi-yak read the blog to catch up with all the news tures are as follows between issues of celi-yak view celi-yak full screen view select pages try it now we think you will love it download to your computer visit http www.celi-yak-newsletter.yolasite.com print select pages

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5 inside this issue disclaimer the contents of this publication are provided in good faith for information purposes only and using the most current information available subject to amendment should not be used as a substitute for the advice of a qualified health professional the professional advisory board of the canadian celiac association the cca has not reviewed this publication use of the information in this publication is at your own risk the cca does not endorse any product referenced in this publication to the fullest extent permitted by law the cca it s local chapters and all persons involved in compiling the publication disclaim any responsibility for and make no representations or warrantees regarding the information provided in this publication in no event will the cca its chapters or those persons involved in compiling this publication be held liable for any damages of any kind resulting from the use of the information in this publication celi-yak is published quarterly by canadian celiac association manitoba chapter 123 st anne s road winnipeg manitoba r2m 2z1 phone 204 772-6979 email office@manitobaceliac.com website www.manitobaceliac.com president s message news notes kid talk update from pres benwell upcoming events ailments tied to gluten restaurant remarks manitoba chapter audit recipes contacts connections 5 9 10/11 13 15 16 16 20-23 24/25 26

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7 president s message h appy valentine s day from arizona thanks to wireless connections and email i am sending in my submission to our ever-patient newsletter guru ron webster on time by the time you are reading this i expect you ll all have had a chance to check out the manitoba chapter s newly revamped and renamed website in addition the chapter now has a long-needed facebook and twitter account jodi lee has done a great job of leading our cyberspace improvement project she welcomes your feedback to what she s done already and is looking for your innovative ideas about what more to add/make it more user-friendly/reorganize the data/etc to all three sites remember that the information on the site is only as good as the information that is being provided if something is no longer accurate she needs to know asap for example booy s foods has ceased production on their wonderful gluten-free foods it s unfortunate that the gluten free community has lost a local supplier of quality gluten-free products like perogies and fruitcake not readily available elsewhere we all know the shelf life of gluten free products is short and the distribution to a niche market is challenging as a group we need to support our local businesses or they will suffer the same fate as booy s thanks to nancy moffat heather yeo dorothy macintyre cathy and bruce jones and all the other volunteers who made the annual pancake event such a success in february i wasn t there to enjoy the gluten-free pancakes but i understand they were just delicious the chapter s appreciation also goes to jeanelle kovacs and jennifer essar for sharing their gluten-free experiences in a variety of settings at the meeting over the winter i have had the opportunity to do some travelling in cuba i stayed at an all-inclusive resort with both buffets and a la carte restaurants i am pleased to say every food service person i spoke with acknowledged my dietary needs some of them were better acquainted with the diet than others but all were willing to listen and learn i have found that it s best to communicate with hotel and restaurant personnel in their own language even if they do speak english they may or may not know what the english words barley or wheat might mean downloading the appropriate translation from a site like www.celiactravel.com makes one s life so much easier in california and arizona there is a huge hispanic influence on foods that s good for us because rice beans and corn are all gluten-free but i was pleasantly surprised by some of the other food discoveries i made trader joe s and sprouts both natural health food store chains carry lots of familiar products and have some that were new to me how about a box of store brand gluten-free waffles for $1.99 at trader joe s the gluten-free pancakes next to them in the freezer section were only $3.99 i was very disappointed that i didn t notice the large bright yellow signs offering gluten-free pizza and pasta at one of the stalls in the food court at the los angeles farmer s market until after i had ordered something else for lunch at another booth however just few stalls over i found pappardelle s booth where they sell ten varieties of gluten-free pastas to take home the owner shared that their gf pastas are all made in a dedicated gf kitchen in colorado and shipped to them on a weekly basis i was sorry continued on page 8

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8 that they had only a few kinds left when i got there www.papparedellespasta.com the celiac scene s list of gluten-friendly restaurant chains list found at www.theceliacscene.com roadmap.php was helpful p f chang s and california pizza kitchen were within walking distance of my anaheim hotel both had gluten free items clearly marked on their regular menu at the outback steak house they have a separate gf menu it looks just like their regular one but specifies item by item what is and is not gluten free including sauces and side dishes fast food tends to be bad news for gluten-free eaters everything usually comes in a glutencontaining bun or on a gluten-containing pizza shell when i walked into a carl s jr hamburger chain restaurant i was greeted at the front counter with a specialty diet list with pictures that included glutenfree options did they have gluten-free buns no but i had a regular hamburger with all the trimmings wrapped inside a couple of huge lettuce leaves it was probably healthier than having it with the bun even if i could have eaten gluten another day i was looking for snacks for a long day in the car and found gluten-free cold cuts that didn t require refrigeration until opened i thought that my 3 ounce package of genoa salami was a bargain for only $1 www.hormel.com a little bit of looking also revealed several varieties and brands of gluten-free cookies and crackers new to me if you re going near the san diego stop by gni gluten not included bakery in escondido www.gnibakery.com the bakery has both a wholesale and retail operation on site and supplies lots of other local sites such as the san diego zoo seaworld and legoland the day i was there the racks of gf biscotti drying to pack were emanating wonderful smells has anyone tried an impossible pumpkin pie from petosa www.petosafamilyfoods.com an arizona-based gf food supplier and the good news is that i found that mix and many others in a regular not specialty grocery store in maricopa please think about what small way you too can contribute outside phoenix such discoveries make to making it easier to eat gluten free can you spare a my suitcase very heavy on my way couple of hours to help staff the chapter display for celiac home awareness month in may could you put the manitoba speaking of home our annual general chapter contact information labels on our canadian celiac meeting is coming up in april come to association brochures how about making a donation to the meeting and share your thoughts the canadian celiac association s right to safe food please think about what small way you campaign so that the kind of information i shared above is too can contribute to making it easier to readily available in places across canada what about eat gluten free can you spare a couple cooking the hot dogs at the chapter walkathon bbq in of hours to help staff the chapter display june each and every one of you is capable of doing those for celiac awareness month in may jobs could you put the manitoba chapter contact information labels on our canadian celiac association brochures how about making a donation to the canadian celiac association s right to safe food campaign so that the kind of information i shared above is readily available in places across canada what about cooking the hot dogs at the chapter walkathon bbq in june each and every one of you is capable of doing those jobs sharing your successes and challenges in eating out wherever you ve been lately is always helpful to others your story about dining on a round-the-world cruise or in a local coffee-shop is the kind of story people look for in our newsletter and on our facebook page if any of you are driving to the canadian celiac association annual conference in kelowna at the end of may the rest of us would like to know the secrets of your gluten-free journey thanks to all those who have worked so hard to assist the manitoba chapter in its 31st year i look forward to seeing all of you over the coming months at chapter events the national conference in kecontinued on page 9

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9 news notes lowna or out at the grocery store happy gluten-free eating for valentine s day st patrick s day easter and all those other days in between don t forget that chocolate is gluten-free susan finlay benefits of eating gluten free the december 28 winnipeg free press had an article on the front page of the life arts section touting the benefits of eating gluten free two gf recipes accompanied the continuation of the article on page d5 the links are http www.winnipegfreepress.com/arts-andlife/food/better-not-bigger136301493.html?device=mobile http www.winnipegfreepress.com/arts-andlife/food/no-gluten-in-yummy-pilaf-torte -136301488.html easy gluten-free book tricia thompson and marlisa browns easy gluten-free book published in 2010 by the american dietitetic association is now available through the consumer health section of the university of manitoba libraries books in the consumer health section can be borrowed by any manitoban for free one does not have to be associated with the university as a student or staff member to have access tricia is the author of several other gluten free books and articles her website www.glutenfreedietitian.com has lots of useful information for celiacs another new gf resource from the u of m s consumer health section is what nurses know gluten-free lifestyle by sylvia llewelyn bower rn while tricia thompson s book is primarily a cookbook the bower book is a general resource it gives an overview of celiac disease along with stories of people who ve been there done that and can walk the reader through surviving a cruise or staying in residence etc gluten-free recipes a magazine-style mini-cookbook jumped out at me at the grocery checkout over the holidays its title gluten-free recipes the front cover s caramel chocolate tart sold me on the 100 pages of recipes for breakfast to desserts for only $5.50 every recipe is accompanied by a picture of the finished product in full colour i think that gluten free has made it when the gf recipe book is on the same rack as people magazine deseo restaurant new year s eve deseo restaurant on osborne street had 3 dessert options on its menu and all of them were gluten free it was a challenge to choose only one of the creme brulee baked pears in caramel sauce or the flourless chocolate cake gf lifestyle for children committee hope everyone is doing well since our last celiac newsletter i ve been getting many inquiries regarding our kids in the school system much of the feedback that i have received many of you feel that the responsibility should fall on the school or the school board to do something about our kids in the classrooms unfortunately it s our responsibility as parents to take and make the time out of our busy schedules whether it be work for a few hours and invest the time in explaining things to the principal then the teacher it s a process that takes time and once you ve invested the time it will make the following years to come much easier in the school many of you parents have called me and i ve shared my success and suggestions with you and also offered to help for the first time this school year my son s kindergarten teacher decided she for once would do everything gluten free in the classroom to celebrate their 100th day in kindergarten she purchased a gluten free betty crocker cake mix made the icing herself with kraft soft marshmallow and snack pack vanilla pudding she was advised to use new butter or margarine so there would be no bread crumbs from home and a cake pan that was clean or new with no traces of gluten she told me she cleaned her whole kitchen and counter top no one at her home could use the kitchen until she was done with the cake the party also included skittles m&m s kraft marshmallows air pop popcorn with a new pound of butter continued on page 18

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10 kid talk st patrick s day fun march 17th katie easter fun sunday april 8 yellow with green dye for chartreuse and added blue for turquoise use a heatproof jar or cup deep enough for an egg to be submerged using tongs to prevent floating keep eggs in dye for one minute for lighter colors or up to five minutes for a darker color adjust tongs periodically so they don t make a mark carefully set eggs atop the pins on the drying rack to dry about 30 minutes allfreecrafts.com blowing out eggs gently pierce both ends of a raw egg with a utility knife and twirl knife to widen one hole slightly straighten a paper clip and poke it through the larger hole to pierce and stir the yolk hold the egg larger hole down over a bowl and blow the contents out with a rubber ear syringe available at mint-chocolate chip shake serves 1 1 frozen large banana as ripe as possible cacao nibs or chocolate chips 2 drops pure peppermint extract 2/3 cup milk i used 200g almond for an extremely rich ice cream like shake try coconut milk also use more or less depending on desired thickness mother s day frozen spinach i used about 1/4 drugstores cup if you can t get on board dyeing eggs gifts with the greens-in-smoothies stick flathead pins into a piece of thing you can opt for green food foam board to create a drying may 13 bookmarks from greeting coloring or have a white mint rack that won t rub dye off the cards for mother shake eggs mix 1 tablespoon vinegar and what you will need about five drops of food coloring in 1 cup of hot water combine pretty pictures from old greeting cards colors as desired for our green decorative items like buttons basket we mixed a few drops of sequins silk flowers beads rib of course you can always add cocoa powder too blend everything together in your blender.

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11 bon feathers etc tacky glue and paper glue card stock heavy paper ribbon hole punches with different shapes scissors and a marker how to make bookmarks we have some exciting news for young campers between the ages of 8 ­ 13 years of age for the second straight summer camp nutimik is offering gluten/dairy free camps ages 8-11 august 6 -10 and ages 1113 july 29-aug3 and before he was killed was tortured and crucified there are however many other stories behind it some true and some urban legends superstitions about friday being lucky or unlucky day have existed since ancient times the number 13 has been considered unlucky for a long time early romans thought 13 was a sign of death and destruction the fear of the number 13 is called triskaidekaphobia coupling the number 13 and a friday is sometimes considered very bad luck lucky for us there are a maximum of three friday the 13th in one year fascinating facts about friday the 13th 1 cut pictures from old greeting this is the second year camp cards so that they are about 2 nutimik in whiteshell provincial park wide by 5 long manitoba is pleased to offer a gluten dairy free option we would like to 2 find matching card stock and make this option available to children cut the cards stock at least 1/2 in manitoba and are seeking your wider than the pictures and sev assistance in doing so the camp eral inches longer these book website is www.campnutimik.com marks measure 3 or 2 1/2 x 8 and for further questions contact 1/2 darlene.at.nutimik@gmail.com the camps offering this diet option are 3 glue the picture to the card junior 2 stock with paper glue then add 8-11 years of age aug 6-10 and decorative items we used silk middle years flowers buttons feathers rick 11-13 years of age july 29-aug 3 rack ribbon and lace in the examples shown darlene bergs camp nutimik 4 you can use a hole punch to food service co-ordinator punch shapes through the bookmark and then add a contrasting friday the color to the back of the book13th marks so that it shows through the holes april 13 5 punch a hole at the top of the bookmark add a matching ribbon and write a message to your mom or a poem on the other side kathy friday the 13th is said to be an unlucky day the modern reason for this is said to come from friday october the 13th 1307 on this date the pope of the church in rome in conjunction with the king of france carried out a secret death warrant against the knights templar the templars were terminated as heretics never again to hold the power that they had held for so long there grand master jacques demolay was arrested calling all campers in french lick springs indiana a law was once passed requiring all black cats to wear bells greek philosophers called 13 an imperfect number friday was the common day for people to be hanged in the past hangmen were once paid thirteen pence halfpenny some texans say never to cut any kind of garment on a friday because it will not be completed many hotels have no room number 13 many buildings do not have a 13th floor many airplanes do not have a 13th row many ships will not start a voyage on the 13th particularly friday the 13th.

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12 overwhelmed with gluten-free have your recently been diagnosed with celiac do you suffer from dermatitis herpetiformis dh are you gluten-intolerant or just prefer to eat wheatfree join the hundreds of gluten-free manitobans who understand what it s like to live gluten-free attend meeting and receive advice on how to cope meet our team of medical advisors and listen to their groundbreaking research receive regular newsletters discover that cooking gluten-free is easier than you thought learn how to ask for gluten-free meals both locally and aboard share with seniors unite with parents hang with teens and meet kids just like you be part of a nation-wide organization that has changed the food ingredient labeling regulations in canada and is currently introducing the gluten-free certification program for food manufactures contact us today we can help phone 204-772-6979 email office@manitobaceliac.com

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13 hello cca this past weekend the board of directors met in mississauga ontario to review the association s performance in 2011 and to make plans for 2012 and beyond we were joined by jacquelin gates from the pab and ivy warren president of the nova scotia chapter both brought a unique point of view to our deliberations and we are very grateful for their time and contributions i would also like to thank the nova scotia chapter for funding ivy s travel costs to the meeting ­ their support of our process is very much appreciated some highlights from our meeting follow 2011 ends with a loss as we projected and reported in october the year 2011 ended in a loss position for the cca two main reasons stand out firstly donations were down though many generous donations came in towards the end of the year as news of our financial situation spread we were never really able to recover from a slow start secondly the board took a deliberate decision near the start of 2011 to invest additional funds in the certification program faced with the choice between cancelling the program and investing some of our available funds the choice was to make the investment the result is a loss of $246,629 on the year our treasurer bob beddie will provide further detail in a subsequent message the financial statement and audit report will be available soon we have also prepared a more formal press release that we will post to the website i prefer this format to communicate with you the chapter leadership but a formal statement is also required how do we fund a loss as a charity we cannot borrow the money from a bank we have nothing to secure a loan against what we do have is our ja campbell research fund this fund has been built up over many years for the purpose of research as will be seen in the financial statements we have effectively borrowed the money from that fund a flexibility which is allowed at the discretion of the board the intent is to repay the jac account but it will likely take a few years to do so contingent on future surplus years the good news is that the jac account is still very healthy fully capable to fund the kinds of research awards we have historically supported in 2011 a jac research grant was approved for a project led by drs duerksen and silvester from manitoba and a young investigator award granted to michelle wiepjes from hamilton in that sense it is business as usual for the cca and for celiac-related research in canada strategic planning we completed a second phase of strategic planning during our recent board meeting we now proceed towards a draft of our three year strategic plan for 2012 -2014 we shall be ready to publish the plan next month in broad strokes we identify advocacy financial sustainability and communication as our three main areas requiring attention within our strategy for advocacy we target an operational certification program and a project to ensure safe gluten free foods are available in institutions this is an important element of our right to safe food initiative for financial stability we recognize that a national fund raising program is a critical but presently missing component for the cca finally on the topic of communication we ll target to improve website database and internet capability for better communication within the organization and with the gf community in general we look forward to publishing the cca s strategic plan and executing it continued on page 14

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14 continued from page 13 board of directors ­ elections the nomination process is completed we will have an election for the rd in british columbia regional directors bill shank midwest and linda dow quebec return for another term along with national secretary mark johnson anne wraggett victoria chapter has been acclaimed as executive vice-president we look forward to welcoming anne to the table two openings remain the board will be seeking to identify and appoint an rd for sw ontario and a national treasurer identifying a qualified treasurer is particularly critical for the well-being of the organization and this has our highest attention fundraising we are planning an introductory presentation of our fundraising plans for 2012 this presentation will take place as an on-line webinar on tuesday march 6th 2012 we tentatively plan for two separate time slots to be able to accommodate as many as possible you will be invited by email from the cca main office to sign up for one of the time slots we can accommodate two delegates from each chapter chapter presidents if you cannot attend either timeslot that day please delegate to another volunteer in your chapter if you have a fundraising chair please be sure to invite them you will be able to listen through the internet or call a toll-free number to listen in while you follow the presentation on your screen details will follow shortly most importantly we are seeking your feedback as we develop this program for the cca i would like to end with some recognition of the chapters that made financial contributions to the national programs of the cca in 2011 without you there is no cca please alert me if i omitted any group nova scotia moncton kitchener waterloo quebec peterborough london calgary saint john ottawa saskatoon halton peel belleville quinte edmonton hamilton st catherines western manitoba kingston durham/simcoe satellite of toronto i recently had a question about the intended audience for these monthly messages and whether forwarding them was allowed we send this message to all chapter executive that we know about ­ though our list may not be completely up to date it s what we have please feel free to forward these messages to anyone else associated with the cca that you believe would be interested perhaps all of your volunteers we generally find that cca volunteers are engaged and interested in the level of detail provided here while the average member is looking for more practical information that directly affects them as such we don t publish this kind of discussion in the newsletter but that is not because we are trying to hide it look for information about our plans for advocacy and awareness in my next message regards brian benwell cca president @gfbri canadian celiac association

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15 upcoming events april 2012 14 saturday may 2012 gf lifestyle group general meeting 9:15 am gf life style group 11am general meeting guest speaker bill swank harrow united church 955 mulvey avenue harrow mulvey 1-31 celiac awareness june 2012 celiac awareness month more information to follow volunteers need to attend the various venues please call the office at 204772-6979 or email mbceliac@gmail.com 2 saturday october 2012 walk-a-thon general meeting 10:00 am kildonan park 2015 main st join us for a good time and to raise funds for the cca enjoy a bar-b-que and many other tasty goodies 6 saturday december 2012 lifestyle group general meeting st anne ukrainian catholic church 35 marcie street north kildonan 9:15 9;15 am gf life style group 11:00 am general meeting 1 saturday lifestyle group general meeting st anne ukrainian catholic church 35 marcie street north kildonan 9:15 9;15 am gf life style group 11:00 am general meeting

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