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calling all celiac research participants page 21 celi-yak is published quarterly by the manitoba chapter of the canadian celiac association

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2 did you know prior to diagnosis celiac patients average 21.4 sick days a year post diagnosis celiac patients average 3.6 sick days a year celiac uk 2006 survey excerpted rom the canadian celiac association blog at http www.celiac.ca/pdfs/ontserologytestinginfo_sep2011.pdf

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the canadian food inspection agency has issued a warning about prolab protein supplements for people with wheat and gluten allergies for more details check the canadian celiac association blog http www.celiac.ca/blog/index.php/2011/10/03/recall-of-prolabbrand-protein-supplements 3

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celivisit celi-yak online we the celi-yak newsletter team want to make your newsletter more enjoyable more informative and more interesting for a variety of ages we encourage you to sign up at http www.celiyak-newsletter.yolasite.com to receive celi-yak online all issues of celi-yak from 2009 to the current issue are available to view online celiyak may be read online selective pages may be printed or download it to your computer to read and/or print pages the website also has a news blog with a comments area members may leave comments or suggestions on the news page businesses are offered information about advertising in celi-yak disclaimer the contents of this publication are provided in good faith for information purposes only and using the most current information available subject to amendment should not be used as a substitute for the advice of a qualified health professional the professional advisory board of the canadian celiac association the cca has not reviewed this publication use of the information in this publication is at your own risk the cca does not endorse any product referenced in this publication to the fullest extent permitted by law the cca it s local chapters and all persons involved in compiling the publication disclaim any responsibility for and make no representations or warrantees regarding the information provided in this publication in no event will the cca its chapters or those persons involved in compiling this publication be held liable for any damages of any kind resulting from the use of the information in this publication celi-yak is published quarterly by the manitoba chapter canadian celiac association 4 try it today manitoba chapter 123 st anne s road winnipeg manitoba r2m 2z1 phone 204 772-6979 email office@celiac.mb.ca website www.celiac.mb.ca

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n ewsletter president s message news notes kid talk celiac s guide to hospital stays upcoming events restaurant remarks fargo conference report celiac gene test flax seed benefits calling all celiac research participants recipes contacts connections 7 9 10/11 13 15 16 17/26/27 18/19 21 24/25 26 5

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er president manitoba chapt susan finlay e ing disc ve had in man ny day as i write overies it over the oba i hope yo this message popping what a u ve m past fe up re an exam gularly ­ even w w months ne ade lots of grea great summer w gf t gluten sented th ple is the fam here you don free d t expect products and e chapte ily food supplier inthem s store in day nigh r at a glu s are t ten free s not only the store was informati tonewall heath op on d e cluding oes family foo en specifically fo night there it r yeo and i rep baking fr reds carry was held r the gf o free an d they h m lorenzo s ­ a large selectio event we wer on a sune n av eanab tomers isle-by-a ut the store sh of gluten free p impressed the sto elf tags isle glute ro re mana group fo are mar ducts ­ inn g r those ked as who eat er has been ins free shopping li he has gluten trum st p glu a many ru list of 45 names ten free so ho ental in develo rinted out for c usra ping a lo w c there in l locations if li i think that this many could th ere be in al support ttle ston thomps is a mod ewall ha on or se cers el that c s s lkirk or ould be tonewall steinbac 45 gluten free replicate i ve wr e h hav d e you ta aters how man in not direc itten a report ab y are lked to tly relate out the your loc fa d family b al grorand of to the conferen rgo conference rice bis ce i d lik at hugo but there cuit e to sha s a coup re did `regular in north dakota s a generic ve you kno le of things rsion of k is clearly w that th ric expecte ellogg s rice k e ou d they w rispies w marked gluten e chex i saw ere mor on the s r there ere glute free a em helf by n n tinuing to consumers lik oney but at lea free kellogg s d right next to the e y ou a st they w rice kris nd had the ask for them e the ma me calling the re there how pies as opportun nito did fo regional it director y to meet with ba chapter me od manufacture they get from sa rs and c mbers th `parents bill sha ska on nk at o our mem f celiac kids gr toon bill was im our manitoba went to fargo oup is d /saskatc bers ha pressed oing wit hewan s actuall division with the h th y on w guess w how to deal w written a draft e school divisio ork that our policy fo ha n ith glute na r her ch s one of her prop t the school ild s sch osed po board p nd other food ool a licy ho intoleran pefully it id attention to her conc ces and will be a ern dopted b y other s s ­ and chool div icontinue d on pag e 21 from the des k of s usan fin it s a be lay autiful b and fall right sun w 7

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gf lifestyle for children committee now that halloween has passed our kids are now looking forward to santa claus and christmas again i find myself calling companies to inquire as to whether a christmas decorated packages of christmas chocolates or candies contain gluten last year i found candy canes made by allan in peppermint cherry and french vanilla flavors are all gluten free the back of the package says this product does not contain peanuts tree nuts milk eggs wheat or gluten it has been manufactured in a peanut free facility some companies in the past have used flour on the production line so the candy canes don t stick prior to packaging lately i m trying new lunch ideas for my son at school i found a product by grimms fine foods called cracker toppers and it contains salami garlic sausage and smoked ham may be a seasonal item around christmas time found at costco they are already cut soy free gluten free lactose free and no msg added i make his lunch with the cold cuts some cheese and crackers and raw veggies he wishing you all the thinks it s great he can make his own little very best this holiday sandwiches season jeannelle great for entertaining pillers meats also have a great web site pillers.com canadian-food-guide select allergy info and then select your allergy and they have a whole list of all their products that are gluten free soy free etc my husband and i were able to attend the fargo celiac conference and found it very informative i am finding that many parents are having difficulty with their children being in school and having to educate the school and teachers about celiac disease i am going through this process myself and found that my son s school has been very accommodating and open to making the necessary changes i would like to compile information on problems encountered by celiac parents regarding our school system please contact me i have called the following companies and the following are gluten free stonemill red kitchen potato salad is gf 2.27 kg -gf heluva good sour cream dip french onion 907 g gf skotidakis tzatziki yogurt dip 454g it comes in a pkg 2 gf apetina feta 1kg gf johnny s great garlic spread seasoning 510g gf found in the spice section grimms cracker toppers4 x 250g1kg for more information about the gf lif style for children committee please contact jeannelle at 228-0878 and leave a brief message and phone number 8

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in the news winnipeg bread and circuses on lilac has closed eat bistro is closing this fall steinbach health first unit 31 178 pth 12 north steinbach manitoba 204-346-0884 email health1@mts.net carries gluten free flours packaged and frozen products including baking from lorenzo s sobeys unit 1 178 pth 12 north steinbach manitoba 204-326-1316 has large selection of gluten free stonewall family foods #3-330 3rd avenue south stonewall manitoba 204-467-5553 email swfamilyfoods@mts.net large selection of gluten free items including lorenzo s products gluten free going mainstream source http www.chatelaine.com/en/blog/in_the_kitchen if you ve had a chance to see the september issue of chatelaine while waiting your turn in the checkout line then you know we are slowly breaking through to the mainstream magazines the headline at the top of the cover reads easy fall recipes ­ gluten-free options i was shocked when i flipped to the table of contents and found not one gluten free recipe but their entire food section dedicated to gluten-free recipes and tips gluten free event at family foods in stonewall mb chapter member heather yeo in the striped shirt cal martin family foods store manager in the middle long time mb chapter member gert neufeld immune system link in celiac disease bone loss cbc news people with celiac disease may be more susceptible to osteoporosis because their own immune system attacks their bone tissue a new study suggests people with celiac disease have a serious intolerance to gluten found in wheat rye spelt barley and other grains gluten can cause an immune system reponse that damages the small intensine in people with the disease about 20 per cent of celiac patients produce antibodies that target a key protein called osteoprotegerin that maintains bone health scottish researchers reported in thursday s new england journal of medicine the result is rapid bone destruction and severe osteoporosis prof stuart ralston of the institute of genetics and mo lecular medicine at the university of edinburgh and his colleagues found not only have we discovered a new reason to explain why osteoporosis occurs in celiac disease but we have also found that it responds very well to drugs that prevent bone tissue removal ralston said in a release previously it was thought that people with celiac disease may be more likely to develop the bone-thinning condition because they may have problems absorbing calcium and vitamin d from their diet the two nutrients are key to the development of healthy bones the antibodies against osteoprotegerin were found in three of 15 patients with celiac disease but not in 10 healthy controls or 14 people with autoimmune hypothyroidism according to the celiac association of canada website an estimated one in 133 people in canada are affected by the disease several of the researchers reported relationships with pharmaceutical companies or patent applications involving osteoprotegerin antibodies for a diagnostic test and treatment useful websites www.glutenfreedrugs.com this website is maintained by steve plogsted a pharm d at columbus children s hospital the site contains information on most medications www.celiacmeds.com the directory of drug manufactureres in the united states including brand name generic prescription and over-the-counter www.celiaccentral.org download resource guides information about celiac and managing a gluten free diet 9

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sugar cookies ask your mom or dad to help you kid talk christmas holiday trivia the word christmas is old english a contraction of christ s mass germany made the first artificial christmas trees they were made of goose feathers and dyed green electric lights for trees were first used in 1895 the first christmas cards were vintage and invented in 1843 the victorian era it s a wonderful life appears on tv more often than any other holiday movie rudolph was actually created by montgomery ward in the late 1930 s for a holiday promotion the rest is history the nutcracker is the most famous christmas ballet jingle bells was first written for thanksgiving and then became one of the most popular christmas songs if you received all of the gifts in the song the twelve days of christmas you would receive 364 gifts holly berries are poisonous contrary to common belief poinsettia plants are non-toxic ingredients · 1/4 cup butter · 2 tb honey · 1/2 cup sugar · 1-1/2 tsp vanilla · 1-3/4 cups gluten free all purpose baking flour · 3/4 tsp xanthan gum · 1/2 tsp sea salt · 1 tsp baking powder · 1/2 tsp baking soda · 2 tsp grated lemon peel · 1 tb water if using electric mixer · 1 large egg white directions in food processor blend butter room temperature not melted honey sugar and vanilla until smooth add flour xanthan gum salt baking powder baking soda egg white and lemon peel blending until mixture forms large ball if using electric mixer blend ingredients then add water if needed 1 tablespoon at a time shape into flat disk cover tightly and refrigerate for 1 hour spray a large cookie sheet with nonstick vegetable spray preheat oven to 325f shape dough into 24 one-inch balls and roll in cinnamon-sugar place 2 apart on cookie sheet bake 10-12 minutes or until edges are set switch position of pans halfway through baking for even heat distribution remove from oven cool two minutes before transferring to rack to cool store in airtight container makes 24 cookies decorating sugar cookies there are so many ways to decorate sugar cookies for christmas all you need is a little imagination and the sky s the limit here are some ideas for decorating sugar cookies painted sugar cookies before baking paint the sugar cookies with a paint made from egg yolk mixed with a bit of food coloring 10

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when the cookies are baked the egg yolk will dry and give it a glazed look you could also make the paint from corn syrup water and food coloring the food network recommends 4 teaspoons of corn syrup and 1 teaspoon of water decorated with royal icing a popular way of decorating christmas cookies is with royal icing you can either buy pre-made icing in tubes or make your own royal icing dries hard so it is great for making borders and decorative lines royal icing can be used to make poinsettias stars or whatever you like add a few drops of food coloring to white icing to make your e m or s own holiday e iviti colored a ct on palette 23 s 22 how page about a green mistletoe flower with a cinnamon red hot for the berries be creative the icing can also be used as an edible adhesive if you make your own you ll need a way of applying the icing you can easily pipe icing by filling a zip-lock bag with icing and cutting off a corner tip to make a makeshift pastry bag twist the bag make sure all the air is out and give it a squeeze pastry bag kits often come with different tips you can apply the icing to create different effects depending on which tips you use icing kits can be purchased in the baking supplies section of your local grocery store these often come with different piping tips christmas party activities candy cane pass supplies 4 candy canes per team have a few extras due to breakage how to play player holds 4 candy canes between fingers and passes them down the line teammate to teammate without dropping pass the ornament supplies straw for each child ornaments cut out of tissue paper tree bell star etc how to play pass the ornaments down the line teammate to teammate by inhaling and exhaling on the straw to hang on to or release the ornament no hands rudolph dash supplies vaseline cut circles out of red construction paper how to play have child put vaseline on their nose and then put the red circles on their nose relay race to the finish with each new person adding their red nose if nose falls go back to bowl and add more vaseline and reapply nose santa says how to play played similar to simon says the player up is santa player will say santa says hop on one foot the children will hop on one foot player will say stop the children are to keep hopping on one foot until player says santa says stop repeat for additional activities such as take one baby step forward step backwards turn around sit down sometimes santa will say santa says and sometimes he won t it s a fun game to play with young children book exchange supplies inexpensive book gift wrapped for each child book the gingerbread man how to play children set in a circle each one holding a wrapped book a room mother reads the gingerbread man story every time the word ran is spoken you pass the book to the person on your right continue doing until the story is over whoever has the book on their lap at the end of the story is theirs to keep and open freeze supplies christmas music how to play begin playing music everyone moves and dances until the music stops then they must freeze in whatever position they happen to be in 11

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guide for someone settled contact the hospital registered dietitian if with celiac disease you are too ill to do this have a family member or during a hospital stay care giver who understands your gluten-free diet do this not all dietary staff members may be familiar being admitted to the with this diet diet technicians nutrition assistants hospital can be a fright meal assistants etc so make sure you talk directly ening experience espe with the dietitian cially those with celiac 8 work with the dietitian discuss the hospital prodisease or other gluten cedures to decide which foods are gluten-free and intolerances whether how they are prepared in the kitchen find out who is you are there for a day-surgery or for three weeks in responsible for approving the gluten-free foods rehabilitation the hospital should be doing everything 9 bring some survival basics from home if the situathey can to meet the needs of your specific gluten tion permits gluten-free cookies crackers condifree diet share this information with your family and ments your health care providers dietitian pharmacist and a box of cereal are easy to store in hospital physicians to ensure the best possible care while rooms a portable cooler or refrigerator that works on a car battery or small electrical outlet attachment can you are staying at the hospital 1 make certain that your family members know keep some items fresh and safe to eat mark all food where this guide is located and bring it with you to with your full name and room number 10 for a planned visit ask if it is possible for the your hospital stay 2 keep this guide with your list of current medica dietary department to order some special gluten-free tions and name and address of all health care provid pasta muffin mix cake mix or bread to make during your ers 3 give this guide to the nurse manager for the area stay if a dietary staff person offers to make a trip to of the hospital where you will be staying also give a the store for you remind them not to purchase bulk copy to the pre-admission nurse to make certain that foods from bins a copy is placed on the front of your chart or documented in your computerized-chart request that it may you have good health and a wonderful stay at the hospital be seen easily by everyone accessing your chart 4 request a written physician s order for a gluten sincerely free diet make sure that the dr s orders label you cynthia kupper rd cd as having an allergy so that all personnel in the hospital will be aware of your dietary restrictions if you are planning an admission make an appoint hi ment to see someone in each department listed here as applicable pre-op surgery medical just to let you know that surgery pharmacy nutrition services-dietitian rehajohnny s potato cheddar bilitation etc prior to your admission soup mix costco is gluten 5 request an allergy wristband you may also request that celiac disease all foods and medicafree i contacted the comtions must be verified gluten-free be printed in pany and they assured me bold writing on your chart at your bedside or on that the product was inthe front of your door 6 ask if you may use your medication from home deed gluten free and if you can bring food to be stored in your room if the soup is delicious please pass it on allowed mark all food with your full name and room thanks number betty kroeker vernon 7 if this is an emergency visit as soon as you are 13

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manitoba chapter meetings note manitoba chapter general meeting location remains st anne ukrainian catholic church in north kildonan but its address is now 35 marcie street due to chief peguis trail construction access is only via gilmore as douglas is completely blocked off saturday february 4 2012 9:15 am introduction to the gluten free diet for those newly diagnosed 11:00 am general meeting gluten free pancake brunch gluten free pancakes sausages juice fruit and coffee will be provided newly diagnosed a refresher course for newly diagnosed individuals a will run december 10 2011 and february 4 2012 from 9:15 to 11:00 am please call nancy at 3340547 for more info or to book a spot request for empty packaging for favorite gf food when you re new at the gf diet it s saturday december 10 2011 hard to know where to 9:15 am start i would like to introduction to the gluten free diet for collect the empty those newly diagnosed guest speaker invipackaging from gf 11:00 am tations to attend have been extended to foods that you enjoy general meeting christmas potluck both a federal member of parliament and use them at the gf lifestyle meetsilent auction and a representative from canada ings to show newly diagnosed individuplease bring a gluten free dish with revenue agency als some tried and true products i ingredient list to share topic cost of gluten free food and in will leave a box at the entrance of the guest speaker catherine marshall come tax issues for those with celiac hall at each meeting and would really dietitian disease appreciate if members would drop off topic seniors and access everyone is welcome to attend the the packaging if you could add a ing gluten free food meeting at no charge sticker or note mentioning where you everyone is welcome to cost for the pancake brunch is $5.00 purchased the item or other comments attend at no charge per adult free for children 12 under that would be great thanks nancy 14

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upcoming events sun mon tue wed thu fri sat 2011 november 20 21 28 22 29 23 30 24 25 26 27 2011 december 1 4 11 18 25 5 12 19 26 6 13 20 27 7 14 21 28 8 15 22 29 2 9 16 23 30 3 10 glut en style free life17 s me 9:15 eting am g e ne ral m 24 eetin 11 g detai :00 am ls on 31 p age 14 2012 january 1 8 15 22 29 2 9 16 23 30 3 10 17 24 31 4 11 18 25 5 12 19 26 6 13 20 27 7 14 21 28 2012 february 1 5 12 19 26 6 13 20 27 7 14 21 28 8 15 22 29 2 9 16 23 3 10 17 24 glut en style free life11 s me 9:15 eting am g e ne ral m 18 eetin 11 g detai :00 am ls on 25 p age 14 4

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