Ashgate Hospicecare Supporter Magazine Autumn/Winter 2016

 

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Ashgate Hospicecare Supporter Magazine Autumn/Winter 2016

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Autumn/Winter 2016 Featured story: A day in the life of one of our Hospice at Home team See page 8

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Contents Page 4  Caring for our donors Page 5  Latest news Page 6-7  Building makeover Page 8  A day in the life of Pam Page 9  Hospice at Home helped me Page 10-11  A night at the movies CD Page 12-13  Events not to missed Page 14-15  Sparkle Night Walk Page 16-17  Limited edition 2017 calendar Page 18  Patient story Page 19  Making a difference Page 20  New Clowne coffee shop Page 21  Day Hospice and awards Page 22-23  Sponsor a Nurse Contributors We would like to thank everyone who has contributed to this magazine. Thank you in particular to our patients, families and supporters who have given us permission to use their stories, comments and photographs in this magazine. Contact... Ashgate Hospicecare, Ashgate Road, Old Brampton, Chesterfield, Derbyshire S42 7JD T: 01246 568801 E: info@ashgatehospicecare.org.uk www.ashgatehospicecare.org.uk Registered Charity No. 700636 A company limited by guarantee, registered in England and Wales. Company number. 2263980 2 Thank you, Ray In this edition of the magazine, we talk about our Old Building Project on page 6 and how we are changing it to make it future-proof for our services for generations to come. We had some sad news earlier this year when we heard Ray Cottam had died. Ray was the architect involved with the initial building project of the hospice before it opened in 1988. After the Hospice opened, Ray remained as a volunteer, working on the main reception, answering the telephone and helping with fundraising. Ray finally retired from volunteering several years ago but his affection and connection with the Hospice never waned and he remained in contact, regularly dropping in for a coffee and a chat about “old times”. He had many stories about his time during the initial building work, such as how a doodle on a notepad resulted in our Chapel being circular, or when he had a frantic call from the builders at 2.00am one morning to be told that the frontage of the old building was in danger of collapse in the gale force winds! He loved talking about his time at the Hospice and was justifiably proud of his contribution and the difference he made to peoples’ lives. Ray supported Ashgate Hospicecare by making regular donations and he always called in to buy his Christmas cards from us. However, Ray’s final gift and recognition of everything that the Hospice meant to him was a wonderful gift made in his Will. His legacy remains with the Hospice. A gift in your Will is something that will cost you nothing during your lifetime but will make a real and lasting contribution to the care of our patients and their families. In fact, one in eight of our patients are cared for using gifts that people leave for us in their Wills – please consider helping us in this very special way. If you would like more information about leaving a gift in your Will, visit our website, email mywill@ashgatehospice.nhs.uk or call us on 01246 568801. Thank you... We would also like to extend our thanks to Harry Fisher who left a gift in his Will to Ashgate Hospicecare of approximately £900,000. The executers of his Will kindly agreed for us to use the money on the muchneeded regeneration of our Old Building.

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Dear reader I usually write a welcome at the start of our magazine, with an update on what’s been happening at the hospice over the past few months. This time, I decided to share something with readers that keeps me awake at night instead... As a community we are facing a problem! Generally people are living longer, and many more people are living longer with multiple, complex conditions, which are life limiting. These people need our care and support. Sometimes the care they need is very specialist in nature; sometimes care is simply about continuity, compassion, dignity and the right to choose where to die. I know that hospice care provides a solution to this problem for thousands of people in north Derbyshire every year. However, the sad fact is that not everyone who needs hospice care is able to receive it. Sometimes our beds are full and our home nurses are so stretched, that they simply can’t get to visit a person in time. Sadly sometimes people die while on our waiting list, waiting for a bed to become available while families struggle on trying to cope. This situation feels unacceptable to me and I want to get to a point where I am confident that we can change this. Over the last few years, we have seen unprecedented demand for our care and we expect this demand to continue to grow. We do aim to support everyone that we can but the sad reality is that we simply haven’t got the resource that we need to be able to provide care to everyone who needs it in north Derbyshire. We’ve got a long way to go, but we are determined to solve this problem and with your help, I’m sure we can raise so much more money. The money I describe will enable us to employ more nurses and carers, meaning we can get care to people as soon as they need it, and most importantly, where they need it. Please help us to do that in your community. A regular gift every month which is affordable to you means I can plan to resource our teams with greater confidence about the affordability. Our Sponsor A Nurse appeal is vital and will help us to solve the problem that keeps me awake at night, I just know it. Turn to page 22 to find out more about the appeal and please help to support us. I’lhleyrboeeuifneeevderme, but rIignhetendoywou. For more details about our Sponsor a Nurse campaign, please turn to pages 22 and 23 Thank you so much for your support; you really are helping to make a huge difference to the lives of local people. Lucy Nickson Chief Executive Read my online blog! For all the latest news from me, as well as some great guest blogs, please check out my online blog. www.ashgatehospicecare.wordpress.com 3

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Caring for our donors By Esther Preston, Director of Fundraising and Marketing You may have seen in the newspapers recently a lot of coverage about how charities use donor data. I want to be open with you about this as your trust really is important. 01  02 03 Does Ashgate Hospicecare sell data? No. The information you have shared with Ashgate Hospicecare about you will only be used by us. We have never and will never sell your personal details to other companies or charities or to any other third party at all. We need to grow our income to meet the growing demand for hospice care so we do use your information to write to you so that we can make you aware of this. We also send you newsletters like this one and you can call, email or write to us at any time and change what we send you or how often we communicate with you. We use local companies to do this. The companies we use do not keep your information once the letters are sent and they provide us with a data certificate to confirm this. I’m concerned about aggressive, cold calling techniques to raise money. We do not use cold telephone calling as part of our fundraising activities. You may receive calls from us if you are already on our database, but it will be to check your details and to thank you for your support. Any calls about our work or latest fundraising campaigns will not be made if you have asked us not to contact you by phone. We use door to door canvassers to sign up new members to our lottery and they all receive training to ensure they are not using aggressive techniques. They are trained to ensure they abide by a set of very strict guidelines looking out for vulnerable people and ensuring that they are not pushy, always polite and a pleasure to deal with. Once a charity has my details, I’m concerned that they are going to bombard me with lots of letters, emails and phone calls. It is really important to me and my team that our donors feel like they have a personal relationship with their local hospice. All of our communications are designed to keep you informed so that you can support us or help us tell others how much we need their support. I hope that this is useful information and helps dispel any myths or concerns you might have had. If you have any questions or feel unhappy about something we’ve done, please get in touch with us. You can call us to give feedback or change your communication preferences at any time by calling 01246 568801 or emailing fundraising@ashgatehospicecare.org.uk 4

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Latest News Partnership Triage Pilot We always look at how we can improve our services and following a service review in 2013/14, one of the recommendations was to develop a Triage and Advice Line so a more effective and efficient service of the community specialist palliative care team could be provided. With help from Macmillan Cancer Support, we have now started to look into how this service may work. We hope that with this additional service, timely and expert support can be provided to our patients, their families and healthcare professionals throughout North Derbyshire. Death Café To promote Dying Matters Awareness Week, which ran from 9th to 15th May earlier this year, we held our very first ‘Death Café’ to help open up conversations around death and dying. The Death Café took place at Chesterfield Library and gave members of the public the opportunity to discuss subjects around death and dying in an informal and comfortable atmosphere. We hope to hold similar events next year, so keep an eye out on our website for the latest news. Ashgate Hospicecare pledges to improve patient safety Ashgate Hospicecare has pledged to improve patient safety as part of the national campaign, Sign up to Safety. Sign up to Safety is a national patient safety campaign to help the NHS in England build a safer NHS and address the problem of unsafe care and avoidable harm. So far, over 360 organisations have pledged support and are committed to improve the safety of healthcare through locally led, self-directed safety improvement and Ashgate Hospicecare is one of a small handful of hospices that have recently signed up. For more information about the campaign, visit www.signuptosafety.nhs.uk Lymphoedema team awarded Derbyshire Dignity Award The Lymphoedema team at Ashgate Hospicecare has been awarded the Derbyshire Dignity Award for the second year running. The award, which has been running since 2011, was presented to the team for the promotion of a consistent experience of dignity for everyone who receives their service. Chris Whiteker, from Derbyshire County Council, said, “It is heart-warming to know that your staff take pride in their work and treat people with the dignity and respect they deserve. This award is not just a paper exercise, it means much more to everyone concerned as we all want to be looked after with dignity. Ashgate Hospicecare clearly shows that you are fully committed to this process. Carry on the good work at Ashgate Hospicecare, you should be proud of your achievement.” Lisa Cresswell, Lymphoedema Specialist Nurse, said, “The Lymphoedema Team were extremely proud to receive the Derbyshire Dignity Award in June 2016. The award demonstrates the teams’ ability to understand and respect individuality, culture and dignity. Completion of the award proved valuable in reflecting over current practice and highlighting areas for service development. As a service we always welcome any patient or carer feedback and the dignity award portrayed how this is valued in driving the service forward.” 5

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Old Building makeover to be unveiled A couple of years ago, we were given the news that the older part of the hospice’s building, which dates back to the 1600’s, was quickly and severely deteriorating. The structural survey that was conducted concluded that without intervention, the building would become uninhabitable within a few years. This, of course, was a shock to us, however we quickly saw the potential that the building possessed and used the opportunity to look at how the layout could be improved to give patients and their families the privacy and dignity they deserve and should expect. Earlier this year, crucial work started to make the building safe again and plans to turn the existing rooms and layout into better use were put into action. The building will enhance our services in so many ways: • An alternative entrance into the Hospice will mean family members returning for bereavement counselling and support will no longer have to walk past patient bedrooms and suffer any further psychological distress by reliving the death of their loved one. Currently two in five people find it too traumatic to come into the hospice for counselling because it is too raw. The current high levels of footfall through patient and clinical areas will also reduce, enhancing privacy and dignity. • The creation of a restaurant and dining area which will have the capacity for 100 diners and will create a relaxing and tranquil surrounding to benefit patients, staff and visitors so they can enjoy a hot meal in comfort, a facility we are currently unable to provide. This will be the first time we have been able to offer hot meals for families. • New counselling and bereavement therapy rooms so our Patient and Family Support Team can provide support within a purpose-built, dedicated counselling area, including an art therapy room. Our volunteer counsellors currently have around fifty people on their case load receiving counselling and art therapy but there are thirty people waiting for an assessment. These additional rooms will have an immediate positive impact on the number of people we can support at any one time. • A new base, storage and maintenance area for occupational therapy has been made through the transformation of our barns, which has freed up valuable space in the original house. • A new training and education area. As specialists in end of life care, we provide training to carers and healthcare professionals, such as GPs and care home staff, enabling more people to receive the best possible care and support at the end of their lives. We have only been able to start work on this project thanks to a very generous legacy from the late Harry Fisher and so will be naming the building in his memory. We still have £250,000 to raise to complete the project and have made approaches to several trusts and local businesses regarding room sponsorship. As well as enabling us to extend and improve our family support services, the building has fantastic original features, which are being retained and restored to enhance the aesthetics of the building both internally and externally. We hope to open the building at the start of 2017. Keep an eye out on our website for more information. 6

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A day in the life of Pam from our Hospice at Home team We provide a number of services at Ashgate Hospicecare at the Hospice itself and in homes across North Derbyshire. In this edition, we’re featuring the work of our Hospice at Home team, who visit and spend time in patients’ own homes, supporting them and their families. My name is Pam and I work in the Hospice at Home Team at Ashgate Hospicecare as a Support Worker. I wanted to share with you a day in the life of what I do to support people in their own homes. 8am I’m an early riser, so I like to arrive at the office before the majority of staff get there. I like the peace and quiet of the office at that time as it gives me the opportunity to plan my day over a cup of tea. 8:45am As the rest of the staff start to arrive, we discuss where we are heading for the day and check that patients we are about to visit have not been admitted anywhere overnight. Then it’s out on the road. 9am On this particular day, I’m going to see Ralph to provide respite which allows his wife to have some time out of the house. Knowing that he is cared for gives her the opportunity to relax and have her hair done. It’s also an opportunity for him to discuss any anxieties he may have. It’s often easier for patients to discuss these with an ‘outsider’ rather than family or friends who they don’t want to upset. Ralph tells me how much he enjoys my visit from what he calls the ‘outside world’. That morning, the district nurse calls in to check on his pressure sore and the telephone rings three times so I take messages to pass onto his wife on her return. 10am Midmorning, I remind Ralph to take his medication that his wife has left out for him. He spends the rest of the morning reminiscing about his past and telling tales from his working life. 12pm In no time at all, his wife returns and I set off for some lunch before going onto my next visit of the day. 1pm My afternoon is spent visiting several patients who I have been asked to monitor by one of the Hospice’s Palliative Care Specialist Nurses. My first stop is to a gentleman who is reaching the end of his life. He lives with his wife and is desperate to remain at home. Several strokes have left him with a speech impediment but he can make his wishes known. Today he communicates that he has pain and the medication he has been prescribed has not helped. He is worried that he will have to be admitted to hospital so he has kept the severity of his pain to himself, but after reassurance from me I contact the specialist nurse at the hospice who agrees to visit this afternoon. 2pm Next on the list is a very independent 90 year old lady who lives alone and has recently been discharged from hospital. I am calling to see how she is managing. She tells me she is glad to be home but hadn’t realised how dependent she had become on the grab rails around the toilet in the hospital. We agreed that on my return to the hospice I would speak to the Occupational Therapists to see if these could be installed in her home. I notice that she does not have a right care plan in place and after explaining this to her, she agrees that this would be a good idea. I agree to contact the district nurse and ask her to complete the relevant paper work. 8

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The Hospice at Home Team helped me 3pm My final visit of the day is a lady who is at the end of her life. For an hour this afternoon, her granddaughter will be looking after her but is nervous about being alone with her grandma in case she dies. My role is to support the granddaughter when the rest of her family can’t be there. She tells me about the happiness her grandma has brought to the family, which makes me feel privileged to be with her at the end of her life. I leave when her family members start to arrive and agree to call them first thing in the morning. 4pm I return to the hospice to document my day on the computer and remember to contact the district nurses and Occupational Therapists about the patients I have seen. 4:45pm Before I leave, I pop onto the Inpatient Unit to see one of the patients I visit at home. They tell me that they’re being looked after and that it’s ‘like being in a four star hotel!’ I will be glad to see them back at home where I can pick up the reigns. 5pm When Audrey, 90, was first put in touch with Ashgate Hospicecare by her district nurse, she was adamant that she wanted to stay at home for as long as possible. It was at that time when Pam began visiting Audrey on a weekly basis in her own home. Audrey said, “I live on my own and although my daughter comes to visit me every other week, it’s always lovely to see Pam. The fact that somebody comes to sit and talk with you is very often enough. Pam’s told me about certain benefits I should be getting and if I’ve ever suggested I might need something, she tells me straight away what’s available. When I realise that I do need something, within a day I’ve got it. Everything is arranged for you. “At one point the hospice’s Occupational Therapists were coming to visit me quite a lot. They brought me lots of equipment and a wheelchair which is absolutely amazing! Whatever Pam suggested she got for me. You can’t buy that kind of thing. “It’s nice because you know that everything will be alright because Pam will be here next week and I know that I can mention things to her when she comes. We’ve got to know each other quite well which is good because it’s continuity that you don’t get with GP’s or consultants.” “I’ve been helped so much by the hospice. It’s very difficult to put the help I’ve received into words.” As I leave the hospice, I reflect on my day and realise how lucky I am to be a member of the Hospice at Home Team. Tell us your story... We’re always keen to hear from people about their experiences of Ashgate Hospicecare. If you would like to share your story, please get in touch! 9

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‘A Night at the Movies’ CD in support of #ChallengeDerbyshire We are really excited to be able to offer a special CD of music by the highly acclaimed Sir Richard Arkwright’s Masson Mills Band. The CD, ‘A Night At The Movies’ features music from various films over the years and proceeds of the sale of the CD will go to #ChallengeDerbyshire, a collaboration between the charities Ashgate Hospicecare 70%, Blythe House Hospice 20% and Helen’s Trust 10%. Sir Richard Arkwright’s Masson Mills Band and the #ChallengeDerbyshire Business Club Members have kindly covered all costs and production of this CD so every penny of your purchase goes to #ChallengeDerbyshire. CDs are just £4.95 each (pplaucsk£in2g.9p9eproosrtdaegre).and 10

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Order yours today You can make an order for the CD by filling in the order form and returning to the address below. Your details Title Address First name Surname Postcode Order details Item ‘A Night At The Movies’ CD (£4.95 each) Quantity and Price Quantity - Delivery - £2.99 TOTAL - £ Payment details I enclose a cheque/postal order (please make payable to #ChallengeDerbyshire) I authorise you to debit my card with the total price on this form (we are unable to accept American Express) Name as it appears on card Card Number Valid from / Expiry date / Issue Number Maestro Only 3 Digit Security Code Signed Date Please return order forms to Danny Hopkins, M.Markovitz Ltd. Unit 2, Rockhead Business Park, Staden Lane, Buxton SK17 9RZ Your data will only be used to complete this transaction and will not be held by M Markovitz Ltd or #ChallengeDerbyshire 11

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Events not to be missed! We have some great events lined up for 2017. For more information about any of our events, to register or get tickets, please get in touch! Visit out website www.ashgatehospicecare.org.uk Call the events team on 01246 233404 E mail us at events@ashgatehospicecare.org.uk January Friday 6th, Saturday 7th, Sunday 8th January Treecycle What do you do with your real tree after Christmas? For a suggested minimum donation of £8 and if you live in a S40, S41 or S42 postcode area, we will remove and recycle your real Christmas tree from your front door! Contact us to pre-book your collection with us today! March Sunday 12th March Woofs and Wellies Dogs are the fundraising stars during March as we welcome our furry friends for Woofs and Wellies, a sponsored walk dedicated to our four-legged friends! Visit our website or contact us for details. Organising your own event? If you want to organise your own fundraising event in aid of Ashgate Hospicecare, please contact our Community Fundraisers, who will be glad to help! June 1st – 7th June Volunteers’ Week Volunteers’ Week is a national awareness week in recognition of those who give up their own time to help and support others. Join us on social media as we celebrate and say a big massive thank you to our volunteers for the support and dedication they provide! May 1st - 31st May Will Month During the month of May, several local solicitors kindly offer a basic Will making service in return for a donation for their work being made to Ashgate Hospicecare. Making or changing your Will is so easy and will ensure that it’s you who makes the decision about what happens to your money, property and belongings after you have died. Keep an eye out on our website and social media pages for information about the scheme. Monday 8th - Sunday 14th May Dying Matters Awareness Week We’ll be joining in with this national campaign, encouraging others to talk openly about death and dying. Keep an eye out for details on our Death Café. Summer clear out? If you’re having a summer clear out during the summer holidays and have any unwanted clothing or good quality items, please don’t forget our charity shops! You can take donations along to any one of our stores across the county, or for any bigger items, please call our Donation Centre on 01246 203727. 12

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July Saturday 1st July Markovitz Showroom Sparkle Night Walk Chesterfield, starting at 10pm The biggest event in our calendar for 2017! Following Ashgate’s biggest ever fundraising success of the Sparkle Night Walk in 2016, we’re looking to make the event even bigger and better than last year! Visit our website for more details and to register today. Friday 14th July Golf Day Chesterfield Golf Club This hugely popular Four Ball Stableford competition is open to all golfers with a handicap and tee-off times are available from 8:30am until 4pm. Team entry is just £220 and includes a three-course meal and wine, plus an evening prizegiving presentation featuring a special guest speaker. We also have sponsorship opportunities available. Call us for more information. Wednesday 19th - Sunday 23rd July London to Paris Bike Ride 4 days of cycling from city to city Instead of our annual bike ride event in 2017, we are excited to announce that next year Ashgate Hospicecare will be having a team in the London – Paris Bike Ride! The 295 mile route will take you through beautiful countryside in the south of England and north of France, before the pièce de résistance; the final cycle up the Champs Elysées to the Arc de Triomphe, following in the tyre tracks of the cycling greats. You’ll also get to watch them cycle the same route the next day in the finale of the Tour de France! Visit our website for details and to enter. August Saturday 12th August Summer Fair Ashgate Hospicecare, 11am - 4pm Join us at the hospice from 11am – 3pm for our Summer Fair! There will be lots of stalls, music, games and fun for all the family. Saturday 12th August Open Air Cinema Ashgate Hospicecare, Evening Following our first ever open air cinema in the meadow of Ashgate Hospicecare, we are doing it again! Watch out for a vote on which film to watch on our social media pages. November Saturday 18th November Christmas Market Ashgate Hospicecare, 11am-3pm Join us for some festive fun with stalls, games, tombolas and a special visit from Santa! December Sunday 10th December Light up a Life Switch on Ceremony Ashgate Hospicecare, 6pm Join us as we come together to celebrate the turning on of the Light up a Life tree at a special service at Ashgate Hospicecare. September Family Bike Ride Date and location to be confirmed Watch out for more information on our website about this brand new family cycling event! October Monday 2nd to Sunday 8th October Hospice Care Week Join us throughout Hospice Care Week as we celebrate the work of Ashgate Hospicecare and other hospices nationally. We’ll be posting on our social media pages throughout the week – please join in! Fancy being in with a chance of winning a great prize in one of our bumper draws? If you aren’t on our mailing list for tickets and would like to take part in one of our draws, please let us know by calling 01246 567250 13

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Sparkle for Ashgate Hospicecare! In 2016, our walkers had a fantastic night out. Not only that, they raised a record-breaking... £168,371 ...for Ashgate Hospicecare! Weelvledroyneone! We’re proud to announce that this year’s sponsor for the Sparkle Night Walk is Markovitz Showroom! 14

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Saturday 1st July 2017 at 10pm Circular route from Proact Stadium 10km sponsored walk Visit our website for more details and to register today 15

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