Celi-Yak Fall 2009

 

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fall 2009 what s inside president s message upcoming events out about news notes restaurant remarks kid talk food product info recipes contacts connections 3 5 7 7 10 11 13 19 20 mark your calendars st norbert farmers market the manitoba chapter will have a booth at st norbert farmers market date september 5 2009 place st norbert mb general meetings manitoba chapter special reports a personal experience with celiac grab your kleenex this is a great family story that will tug at your heartstrings and leave you with a renewed faith in human kind date sat oct 3 2009-11am details on page 5 date sat dec 12 2009 11am details on page 5 place st anne ukrainian catholic church 455 douglas avenue north kildonan 8 a letter from a bride married in winnipeg it s getting close to 2 months since my wedding in winnipeg and i wanted to put forward my gf recommendations 9 red river celiacs 4th gluten intolerance education conference date november 6-7 2009 place holiday inn fargo nd details on page 5 or at www.redriverceliacs.org report from cca 2009 national conference the kitchener-waterloo chapter of the canadian celiac association hosted the 2009 canadian celiac annual conference in may 2009 12 disclaimer the contents of this publication provided in good faith for information purposes only and using the most current information available subject to amendment should not be used as a substitute for the advice of a qualified health professional the professional advisory board of the canadian celiac association the cca has not reviewed this publication use of the information in this publication is at your own risk the cca does not endorse any product referenced in this publication to the fullest extent permitted by law the cca it s local chapters and all persons involved in compiling the publication disclaim any responsibility for and make no representations or warrantees regarding the information provided in this publication in no event will the cca its chapters or those persons involved in compiling this publication be held liable for any damages of any kind resulting from the use of the information in this publication a unique website project promotes awareness of cd we learned about the disease the gluten-free diet and the importance of reliable gf dining options 17 celi-yak is a quarterly newsletter of the canadian celiac association manitoba chapter

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celi-yak fall 09 www.celiac.mb.ca meyers drugs ltd 483 william ave winnipeg manitoba r3a 0j5 tel 204 943-1466 fax 204 947-3329 email meyersd@mts.net new arrivals booy s frozen foods specializing in perogies empanadas pocket pies and pizza crust coming soon pop tarts and fruit cake made in manitoba chebe baking mixes assorted mixes barkat tagliatelle pasta 500g thomas utopia organic tomato paste 165 ml $1.29 pure fit assorted gluten free protein bars glutenfreeda s burrito vegan and dairy free bakery on main granola now available in family size 624g go naturally organic and gluten free hard candies assorted flavours hevy d s old fashioned popcorn 190g trader joe s golden roasted flax seed 425g reg $6.99 muscles by meyers sports supplements has a huge selection of gluten-free proteins sports supplements by dymatize heartland gold progressive nutrition be sure to stop by our health depot and check out the growing selection of gluten-free specialty foods and natural health products health depot east 635-1615 regent ave 204 661-1534 health_depot@hotmail.com 2

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www.celiac.mb.ca celi-yak fall 09 president s message it s fall 2009 already in another few months the manitoba chapter will be hosting the 2010 canadian celiac association national conference as you can susan finlay see from the rave president manitoba chapter reviews bonnie and heather gave the speakers at the may 29-31 conference in waterloo the manitoba chapter is going to have to work hard to meet the standards set by sue newell and the 2009 conference committee that said the manitoba chapter is absolutely up to the challenge over the summer the mayo clinic s dr joseph murray our 2010 keynote speaker http mayoresearch.mayo.edu staff/murray_ja.cfm released results from his ground-breaking research about the fivefold increase in the incidence of celiac disease over the past 50 years that astonishing news has generated a cascade of other media exposure for celiac organizations in both canada and the united states janet dalziel our national president appeared on the ctv national news in july an article in the globe mail prompted margaux watt from winnipeg s cbc radio to arrange an interview about celiac disease sue newell s story originally published in the toronto sun was reprinted in the winnipeg sun just think ­ celiac disease got all this unsolicited publicity ­ and it wasn t even celiac awareness month when you re a celiac every month is celiac awareness month in the last couple of months i was able to join the group dinners at eat bistro or confusion corner bar grill discovered a taste of laos with its dedicated gluten-free menu found a vastly expanded and clearly labelled gluten-free section in the superstore on mcphillips and enjoyed some great gluten-free food at folklorama as a veteran attendee i have found that the hispanic and asiatic pavilions are good choices for eating gluten-free as rice and vegetables tend to be mainstays of their diets when i asked the fellow serving at the irish pavilion what was in the food the question didn t stump him at all he immediately referred to the ingredient list posted on the wall and pointed out what i could ­ and couldn t ­ eat on their menu it was no big deal for him ­ but a real step forward for celiac to be able to participate in great events like folklorama i was disappointed that the cuban pavilion had run out of flan before i got there ­ but it was nice to know that at least one pavilion had a gluten-free dessert on the menu ­ if not on the shelf serving our large geographic base and various constituents is not always straightforward but persistence and creativity does work iva yeo and i had the opportunity to connect with the manitoba gastroenterology nurses group at their annual conference in june these are the people who work in the clinics and procedure rooms where you and i are diagnosed as they are often the first people in contact with the newly diagnosed celiac the chapter has been working on providing information pamphlets for their offices even though all of the canadian celiac association s brochures are available on the internet at http www.celiac.ca englishcca/eproducts.html people still appreciate receiving printed information http www.celiac.ca/pdfs glutenconnection-eng.pdf takes you to the online version of the new bilingual resource celiac disease ­ the gluten connection published by health canada in conjunction with the canadian celiac association and the fondation quebecoise de la maladie coeliaque look for a new brochure about the benefits of membership in the manitoba chapter and the canadian celiac association this fall remember how h1n1 influenza had grabbed all the headlines in may well celiac disease shared the opening banner of the health canada website for the whole month of may i think that really is telling about the stature of celiac disease in canada today health officials are expecting a resurgence of h1n1 by the time you read these words don t forget that as a person with a chronic illness you are eligible for both a free influenza shot and a free pneumococcal shot remember that the flu shot must be repeated annually but that the pneumococcal shot only needs to be given once see http www.manitoba.ca/health 3 flu/docs/flu.pdf for more information in the middle of july when the rest of you were at the lake or at least wishing the weather was balmy enough to be at the lake joanne craig introduced the new class of chefs-to-be at red river college to celiac disease we re hoping for great weather on saturday september 5 when the manitoba chapter will have a booth at the st norbert farmers market thanks to marilyn firth for the opportunity to be at the market have you made it over the border to pick up some of the new gluten-free cake mixes made by betty crocker yet if not there will be a great opportunity for both learning and shopping november 6th and 7th the red river celiacs 4th gluten intolerance education conference to be held at the holiday inn in fargo will feature dr cynthia rudert gastroenterologist from atlanta and shelley case celiac guru and dietitian from regina check out http www.redriverceliacs.org for all thedetails that will just be a precursor to our own june 4-6 conference at the victoria inn near the airport besides dr murray whose outstanding work was referred to three times in the sessions at the waterloo conference ­ without any prompting by us our own dr donald duerksen recipient of a canadian celiac association research award for a second time will be speaking about his latest research we re pleased that sherry torkos a published author/pharmacist from ontario will be on the program see http www.sherrytorkos.com/media.html for a taste of what she has to offer more great speakers are being confirmed stay tuned although there is a dedicated group of volunteers involved in planning all aspects of the conference from the gluten-free food to the facts to the fun more people are and will be needed to help with a whole myriad of tasks both before and during the conference think about sharing your time and talents just contact the manitoba chapter at 772-6979 or send an email to office@celiac.mb.ca susan finlay president manitoba chapter

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celi-yak fall 09 www.celiac.mb.ca 4

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www.celiac.mb.ca celi-yak fall 09 upcoming events grandview health conference the grandview health conference will be held october 20 21 in the grandview parish hall grandview manitoba the manitoba chapter will participate in this conference as someone in the community asked for celiac disease to be on the program thanks to carolyn penner and heather yeo who have agreed to represent the chapter at the event manitoba chapter general meetings there are just two general meetings left in 2009 both will be held at the st anne ukrainian catholic church 455 douglas avenue north kildonan meeting dates saturday october 3 11am new fundraising program announcement details page 7 guest speaker diana coutu diana s gourmet pizza saturday december 12 11am this meeting will include a christmas potluck and silent auction guest speaker lisa graham nd the red river celiacs 4th gluten intolerance education conference the red river celiacs 4th gluten intolerance education conference to be held on november 6th and 7th at the holiday inn in fargo will feature dr cynthia rudert gastroenterologist from atlanta and shelley case celiac guru and dietitian from regina visit www.redriverceliacs.org we ve got what it takes to take what you got please be generous staples dividends help us earn dividend rebates at staples business depot when you make a purchase at staples please quote our dividends number 810 677 7488 or the manitoba chapter phone number 204 772-6979 the rebates help pay for the printing costs associated with the celiyak newsletter your opinions thank you to all our members for sharing information for this newsletter feel free to pass on information such as recipes restaurant reviews product information and any relevant experience to our newsletter chair heather yeo at newsletter@celiac.mb.ca phone numbers and contact information are listed on the last page of every newsletter 5

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celi-yak fall 09 www.celiac.mb.ca 6

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www.celiac.mb.ca celi-yak fall 09 news and notes thoughts from celiac awareness month in manitoba may 2009 notes from experiences of joanne craig and iva yeo sat may 2nd susan finlay and i spent several hours at the st boniface research centre where the gastroenterology nurses were having a conference the booth was well attended with several visitors and many questions and comments one of the highlights for me was the fact that the chron s and ulcerative colitis table was situated next to ours and we were able to share many stories with nancy nagy we managed to enjoy the presentations by 3 outstanding physicians as well wed may 13th joanne craig spent the morning at our table at the victoria hospital and irene hallgrimson and i spent the afternoon listening to many staff members sharing pamphlets and selling a few cookbooks and dictionaries we kept track of those who stopped by and included many of their comments and questions thursday may 14 i was invited to be the 2nd presenter susan finlay had spoken to a separate group on tuesday the 12th at the simkin centre on mcgillvary boulevard those attending were registered dieticians from a variety of extended care facilities i was most impressed with the discussions regarding the relatively new blood test for celiac discovery and their understanding of the absolute necessity to follow up positive blood results with a jejunal biopsy before proceeding with a life long gluten free diet one rd stated that a couple of years ago they followed those patients that had osteoporosis gastrointestinal symptoms and had them tested first with the blood test second with a biopsy if the test was positive she stated that there had been several diagnosis of celiac disease made tues may 19-joanne craig and i spent a delightful hour at the st james legion hall speaking with retired government employees we were surprised by the great number of questions asked by members in the audience one of whom had celiac disease unfortunately i made the comment in summing up our presentation that despite the inconveniences of having celiac disease there are so many other disorders that would cause greater problems i do not have ms copd or post polio syndrome so it is easier to cope with cd when the president of the group stepped forward to thank us in his response he said i happen to have ms from the sound of things i would rather have that than what you have to deal with it cannot but help to spread the cd word as often as we can new fundraising program we re thrilled to announce a unique new fundraising program that will allow everyone to donate hundreds of dollars a year without dipping into their pockets we all buy groceries right this program that will enable anyone who buys groceries to donate without incurring any extra cost imagine here s how buy grocery cards from the manitoba chapter sobey s available at oct 3 general meeting safeway available at dec 12 general meeting and use them to buy your groceries every month let s say you spend $125 each week the manitoba chapter receives about 8 of that or about $520 per year s susan usa onique nne m the food was delicious and plentiful susan heat enjoyin h g pizza er pizza we had a very successful 10th annual walk-a-thon thanks to our very generous sponsors uns hot dog b kinnick kinnic d water s bottle er s drug mey freybe wiener s s fine foods cash hoffma n 7

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celi-yak fall 09 www.celiac.mb.ca a personal experience with celiac disease dear readers mommy my stomach hurts eight months of stomach aches doctor appointments needles tests lack of energy feeling sick and many tears we finally got the news that our son paolo was diagnosed with celiacs disease on february 18th 2009 at a follow up appointment with dr p sathya at the children s hopsital paolo s gastroenterologist told me the results of his biopsy simply stating `your son s test results have come back positive for celiacs disease `let me share with you what this means for your son for you and your family i know i was sitting there and i was listening to her as she was telling me the effects of celiacs about the change in his diet new foods different way of eating and the no s wheat barley rye etc reading labels his own toaster and labeling his `gluten-free food items gluten-free what s gluten-free i thought she did not rush me through or speak too quickly and answered the few questions that i could muster dr sathya was very thorough and of course mentioned there was a lot of information to absorb for one day and to take it one step at a time that it will all come together i thanked her and took all the information sheets with me to be honest i don t think i heard a word passed `your son tested positive i also didn t process the appointment until the drive home i called my husband tony with the news once i said the words my eyes filled with tears and at this point it had finally registered all the words that i had just heard at the appointment i started playing it all back at this point i didn t really know what it all meant or what was ahead for us but thought what will we do for our friday pizza night we immediately started reading labels googling researching became consumed with the world of celiacs hidden wheat gluten-free wheat in barbecue sauce in soy sauce in licorice so many things we are learning and oh my goodness so many more things to know it all seemed so daunting how were we ever going to figure all this out a few days later my husband i met with dayna weiten registered dietitian at hsc and i brought my list of what seemed like a thousand questions she was great she answered all our questions more she provided us with where to shop for our gf food items now i know what gf stands for and which restaurants would be a safe place to take our son to our delight she said `mona lisa restaurant dayna told us it was a great choice and that they were one of the first restaurants in the city to provide their customers with gluten-free options i was particularly pleased to hear this as my brother joe his wife alfina are the owners dayna also suggested that we go to meyers drugs which offered a great variety off gluten-free options plus it was close to the hospital we popped into meyers it was busy little store and then we saw it we saw the `wall of gluten-free products honestly we heard the angels sing look at all these products i gasped we were like kids in a candy store we felt relief we were smiling we were drawn to a few ladies discussing the gf breads we introduced ourselves and felt some comfort in how receptive they were to help us out and to give us pointers on getting started with the basics pat a lovely lady chatted with us for a long time shared that she had some recipes that `you d never know they were gluten-free through a few emails we ve added some great `does not taste like gluten-free desserts to our gf binder thank you pat for your time kind words great recipes another dear person is monique clement vp of the celiac association mb chapter tony i met monique at mona lisa restaurant she was a guest speaker who shared with the employees a wealth of information regarding celiacs gluten-free cross contamination the importance of listening to the words of the diner when they say i have celiacs disease i am on a gluten-free diet and how to make their dining experience pleasurable just like everyone elses we made arrangements and met with her another time purchased great books that helped our family tremendously especially the 2007 product information guide it just made it seem like the list of food options rose from 10 to 1000 we always read every label just in case ingredients change but believe me for a mom dad and for the sake of our little boy we ve never been so happy to read that aero bars are glutenfree yeah `butter-chicken sauce in the jar yippee and european wieners from costco i guess it helps make you feel like you can still live your life just like everyone else you just have to make different choices monique thank you so very much for spending so much time with us your calm disposition and reassuring words have made us feel like it ll all be okay and thanks for always saying one day at a time truly great advice great wordstoliveby dining out do we bring our son should he eat at home before we go should we not go at all meet up with the rest to the family later our first family restaurant outing was a little stressful to say the least being so new in the gluten-free process we just didn t know what was the best thing to do so we didn t have to deal with our son wanting things everyone else was having because it was just so new for us my husband i went for lunch with the family the kids ate and stayed at home we did not enjoy one moment of that lunch and realized we needed to include paolo in the activities we were involved in and not exclude him as bad as that first experience made us feel we learned a great deal that day like how to manage our outings properly and especially to preplan and do things together as a family we have a large italian family having said that pasta bread baking are a staple in our culture aaaaaggghhhhh how do we explain this to our dear sweet `mange eat more pasta nonnas well it wasn t as difficult as we thought immediately once we explained the situation their pantries were stocked putting meyers drug store out of business wow glutenfree everything as nonna angelina nonna lidia said when paolo comes over he will have alotta food to eat no problem settling in to our new world of prepping food we wanted to make sure paolo felt like he was able to share a normal meal time and his sister natalia 14 brother nikolai 11 make sure of that natalia is a great help the kitchen and ensures all paolo s food is kept uncontaminated and that his continued on page 16 8

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www.celiac.mb.ca some interesting news from caa president janet dalziel the press release from the mayo clinic on the increasing prevalence of celiac disease and the four-fold risk of death if undiagnosed certainly grabbed media attention over the last month there have been stories in major newspapers across the country national and local radio and television coverage and health magazines are also taking notice while the mayo clinic study grabbed attention in july the august issue of scientific american a highly respected general circulation science magazine carries a major article on all aspects of celiac disease by dr alessio fasano if you have not already seen this article i urge you to go out and get a copy it is very well written and provides an excellent overall description of cd through the history of its discovery and up to all that is currently known including all the drug therapies that are under investigation i know i learned quite a lot that was new to me and the diagrams used to illustrate the facts are extremely well done the theme of the article is that understanding cd and developing therapies other than the gf diet are important for the study and treatment of many other autoimmune diseases celiac disease may provide great insights into the workings of these other conditions and could lead to effective treatments even cures for them one day a letter from a bride married in winnipeg it s getting close to 2 months since my wedding in winnipeg and i wanted to put forward my gf recommendations that i had while i was in town as i said i would way back when i initially wrote you inquiring about gf bakeries mona lisa s gf pizza was a-m-a-z-i-ng i wish we had mls in montréal they don t make their pizza crust themselves they use kinnickinnick brand i believe and it was bar-none the best gf pizza i have had in the last 2 years including store-bought and home-made in-restaurant crusts they only sell one size medium but i nearly ate the whole thing myself it was that good i also wanted to recommend cakes by celi-yak fall 09 shelley for gf birthday/wedding celebration options she makes nut and chocolatebased gf flourless cakes my friend and i had this option at my wedding reception while everyone else enjoyed the regular wedding cake and it was delicious shelley was very professional her prices overall were amazing and very affordable and she makes a beautiful cake she said she made her gf options flourless because she s very picky about her cakes being of the highest standard and she found using gf-flour mixes to date to be disappointing and not of the quality she s used to everyone and i mean everyone said the cake and gf cupcakes were the best they ever had i hope this will be of some use to your members andrea volunteering saves a life while volunteering at the seven oaks hospital cca display in may i experienced chest pains i went to the emergency and it turned out that i had a heart attack god leads in mysterious ways nettie kiesman 9

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celi-yak fall 09 www.celiac.mb.ca restaurant remarks pizza pizza whytewold emporium s bistro starbuck s 2 locations portage ave ferry road 2677 pembina hwy winnipeg manitoba this bistro serves gluten-free pizza 190 gimli road whytewold manitoba celiacs rejoiced when they heard starbuck s had introduced a gluten-free valencia orange cake unfortunately before most of us had a chance to try it it has been discontinued it was described as delicious but very much a treat 16 grams of fat and 290 calories however the cake has been replaced by the kind bar this bar is not a freshly baked item but was chosen the best healthy snack by `health magazine it is currently only available in the u.s but is coming to canada soon only 5 minutes south of a new pizza restaurant with gluten-free winnipeg beach pizza they only offer medium size http www.wwemporium.com enough for 2 people but it is very reasonably priced just regular price plus $3.75 we had it last night and it was delia taste of laos cious my husband is actually the one with 840 erin street 779-7291 cd so i tried the crust too and even for me this is a small asian restaurant with a a gluten eater it was chewy and tasty separate gluten-free menu the owner had so many people coming in to request glujodie smith ten-free food that she actually pulled out the gluten-free items from her regular menu and made a separate gluten-free menu 10

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www.celiac.mb.ca celi-yak fall 09 kid talk school lunch or lunch boxes ideas from the victoria newsletter oct 2008 going back to school and eating lunch there can be a challenge for celiac kids since cafeteria food is often not celiac-friendly here is a starter list you can hang on your refrigerator that will aid you in packing up enticing lunches make sure to add things you know your child will love cold choices · rice chips or any favourite gluten-free chips · cheese sticks · freybe gourmet foods luncheon meat or degenhardt s · homemade hummus or other bean dip with celery and/or carrot sticks · plain spreadable cream cheese · spreadable cream cheese mixed with crushed pineapple or a teaspoon of favourite jam vary the flavours to keep up interest favourite nut butter raisins or other favourite dried fruit potato salad with bits of ham chicken turkey or boiled egg · mixed bean salad · pasta salad · homemade california rolls for a wrap containing a choice from among the following use food for life brown rice tortillas egg/chicken/tuna/turkey salad gluten-free sliced meat with cheese slice tomato and pickle taco fillings such as bean mixed with salsa and shredded cheddar cheese hardboiled egg for peeling at lunchtime hot choices send in a wide-mouth thermos · annie s lentil soup · homemade soup or macaroni and cheese · heinz baked beans in tomato sauce · · · desserts · cookies · fruit · yogurt · kozy shack rice pudding or tapioca pudding · fruit cup unsweetened applesauce · hershey s kisses · homemade carrot cake · homemade crisped rice squares made with nature s path gluten-free rice crisp cereal notes since your child won t be able to partake of special hot lunch days at school send something that is similar for example if it is pizza send a pizza to be warmed in the micro-wave at the school cafeteria if this doesn t work send a regular lunch and organize a gluten-free pizza night at home that same day provide the teacher with a bag of hershey s nuggets to give to the celiac child continued on page 19 11

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celi-yak fall 09 www.celiac.mb.ca report from cca national conference may 2009 dr markku maki dr maki md phd gastroenterologist professor of pediatrics at the university of tampere tampere finland dr maki is an international leader in the field of celiac disease he has headed a research group the celiac disease study group in finland which researches the diagnostics epidemiology genetics and gut mucosal epithelial cell biology of celiac disease his motto is research of today is the treatment of tomorrow he commented that without research celiacs would still be on a banana diet dr maki opened his talk with some history on celiac disease he showed us pictures of young cd patients from years ago with their swollen bellies and the contrast with pictures of people today with cd on our gf diet today we look so healthy in comparison he spoke on the diagnosis of cd and the many blood tests the need for biopsy for final diagnosis and the changing trends in diagnosing it his goal is to reach a point where the method of diagnosis would begin with family history and screening for genetic gluten intolerance with a positive lab test no biopsy would be required today there is much focus on public awareness and education use of the media and use of proper screening his overriding message was the importance of educating those providing primary care we enjoyed dr makai he is very likable and has a wonderful sense of humor we were so lucky to have heard him speak dr jenni zelin dr jeni zelin md runs a family practice at four neighborhoods community health centre in charlottetown pei dr zelin has cd and her son also has it she had symptoms for 22 years before diagnosing herself while in medical school while she was in med school she had only a one hour lecture on cd during her 5 years of training because she is a celiac she views medicine from a different perspective she spoke of a lack of guidelines for doctors to follow after the cd diagnosis should patients be seen yearly what blood tests to order follow up scope doctors love rules to follow like in diabetes heart disease some doctors are well meaning but try to advise about the gf diet without full understanding of it she requests more blood tests for celiac screening than any other md in p.e.i her advice cook bake share be aware of eating out look at other cultures food and enjoy feeling better she closed with this quote from george bernard shaw there is no love more sincere than the love of food marion zakadas marion zarkadas m sc rd is a specialist in nutrition and labelling foods for the canadian gov t she is on the professional board of the cca in 1989 she was diagnosed with cd she said that research on cd involves prevelance diagnosis and screening genetics immune system associated diseases new treatment and diet she gave us an update on the study living with a gf diet the survey we did 72 of the membership responded to the study the first outcomes of this study are the health canada poster explaining celiac disease and the brochure celiac disease the gluten connection panel panel discussion questions were taken from the floor by dr switzer dr maki dr zellin in answering one question dr switzer said that her most important message is that it is ok to have cd it is ok to be tested for cd the gf diet is ok and we don t need to be apologetic dr zeller said we should talk to society be alert go out to eat go to parties speak out educate that is our job not the doctors jim mccarthy spoke on the need for equality across canada re testing for cd costs being covered by the health care system genetic testing testing of relatives etc currently in ontario blood tests for cd are not covered by the health plan currently in ontario blood tests for cd are not covered by the health plan dr mohsin rashid dr mohsin rashid md m ed frcpc is a paediatric gastroenterologist and an associate professor of paediatrics at dalhousie university in halifax his focus is on education to improve awareness of cd in the medical community and the public he told us the prevalence of cd is 1 in 100 worldwide it is old and common and for cd to be atypical is typical to be diagnosed in canada usually takes 11.7 years but that seems to be improving with education and awareness he has written a book on cd the road to diagnosis he selected 16 members of the cca to tell their story each story cited a specific aspect of the disease 12 the book has been sent to 287 family doctors in their final year of training he concluded his lecture with a picture of a chameleon a lizard that is capable of changing colour to match its surroundings a fitting symbol for celiac disease dr farid mamud dr farid mahmud he is a specialist in paediatric endocrinology at the hospital for sick children in toronto in the 1960 s it was discovered there is an association between type one diabetes and cd one person in 20 with type one diabetes will also have cd the two diseases share some genetics for any doctor treating a patient with both diseases the control of his diabetes will be of the most importance treatment is difficult diabetes needs a diet insulin and exercise to be controlled cd also requires a strict diet the diagnosis of a second chronic disease will be more difficult for the patient to cope dr mahmud is currently doing a study evaluating the impact of people with a second chronic medical condition the purpose is to compare quality of life and how they are managing their diabetes with another chronic condition dr jocelyn silvester dr silvester spoke about a study conducted to determine the follow up care by canadian gastroenterologists 76 of surveys returned noted that the doctors did follow up care the recommendation is that long term care be provided annually using a team approach including the gi the primary care physician and dietitian dr connie switzer dr switzer provided us with an update on the caa professional advisory board some of the highlights advice to cca on pevena trademark reviewed research projects for the dr j.a campbell research awards consideration of new research initiatives jim mccarthy jim introduced new cca program for gf and pevena symbol licensing a process is underway to develop cca certification for gf food cca has registered two trademarks pavena which is used for products containing oats and gf which is defined as no person shall label package sell or advertise a food in a manner likely to continued on page 13

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www.celiac.mb.ca celi-yak fall 09 food product info v-h products march 16 2009 currently all vh products do not contain gluten with the exception of vh teriyaki stir-fry the only sure way to know whether or not a product contains a certain ingredient is to check the carton ingredient list on the package from time to time products are reformulated and ingredients may change maple leaf foods maple leaf foods recently changed the recipe of its top dogs hotdogs to improve flavor and taste the new formulation now contains wheat gluten instead of soy although top dogs hotdogs were never a certified gluten-free product maple leaf wanted to notify the canadian celiac association as this product may be referenced by members as a suitable choice the new recipes will be in stores in july 2009 and feature the updated ingredient list on the package please note the list of top dogs products that have been reformulated · top dogs original · top dogs original bbq size · top dogs all beef · top dogs singles · top dogs 33 less fat than bbq size kinnikinnick as of june 15 2009 kinnikinnick s food products have no nuts you read that right no more nuts in any kinnickinnick products so those with nut allergies will be able to eat their products this means the end to two products lemon cranberry almond and double chocolate almond cookies however they will be replacing those cookies with something new see more at www.kinnikinnick.com they have also improved their hot dog hamburger and seven-inch pizza crusts the crusts are now square thinner and not as sweet oregano soup 284ml · chunky chicken sausage gumbo soup 540ml · chunky split pea with ham soup 540ml · chunky hot spicy chili soup 425ml · ready to use vegetable broth soup 900ml campbell s will be applying a gluten-free logo to its gf products in the coming months mikes hard lemonade in canada mike s spikes its drinks with a potato based vodka however those sold in the u.s.a are made using a malt base and are not gluten-free benefiber note that the product formulation is completely different in canada from the us in canada the product is made from inulin not dextrin http www.benefibre.ca products/index.shtml?benefiberpowders inulin according to our pocket dictionary is soluble polymer of fructose found in plant species such as chicory artichoke and leek it is commonly manufactured from chicory root often used as a source of fiber or as a prebiotic in supplements and some foods it is identified as an ingredient that is allowed cca national conference continued create an impression that it is gluten free unless the food doesn t contain wheat including spelt and kamut or oats barley rye or triticale or any part thereof panel discussion what does it take to produce gf food and why is it so expensive some examples many raw materials need to be imported rice flour tapioca flour xanthum gum use of lots of eggs kinnikinnick is largest consumer of eggs in western canada raw materials must be tested to ensure they are gluten-free production facility must maintain gf status staff must be trained re food allergies distribution costly-to warehouses then to stores constant testing of finished products to maintain gf standards 13 a dry muffin mix that is sized to be made in your coffee mug just add water microwave for 2 minutes and you have a fresh hot gluten free no sugar lactose free muffin our mug muffins may have no sugar dairy gluten or corn but they sure have lots of flavor now available mocha and fruity under development carrot and banana available by phone or online gift packs available call today for more information 799ph 204 799-2703 email hsquaredinc@gmail.com www.hsquaredinc.webs.com box 254 hazelridge mb r0e 0j0 campbell s soup campbell s soup announced 7 products that are gluten-free · condensed chicken with rice soup 284ml · condensed chicken with white wild rice soup 284ml · condensed tomato with basil &

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celi-yak fall 09 www.celiac.mb.ca 14

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www.celiac.mb.ca celi-yak fall 09 15

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