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Celi-Yak is a quarterly publication of the Canadian Celiac Association, Manitoba Chapter
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n ewsletter spring 2011 celi-yak has a new look pg 18 celi-yak is published quarterly by the manitoba chapter canadian celiac association[close]
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www.celiac.mb.ca celi-yak spring 2011 newsletter disclaimer the contents of this publication are provided in good faith for information purposes only and using the most current information available subject to amendment should not be used as a substitute for the advice of a qualified health professional the professional advisory board of the canadian celiac association the cca has not reviewed this publication use of the information in this publication is at your own risk the cca does not endorse any product referenced in this publication to the fullest extent permitted by law the cca it s local chapters and all persons involved in compiling the publication disclaim any responsibility for and make no representations or warrantees regarding the information provided in this publication in no event will the cca its chapters or those persons involved in compiling this publication be held liable for any damages of any kind resulting from the use of the information in this publication celi-yak is published quarterly by the manitoba chapter canadian celiac association manitoba chapter 123 st anne s road winnipeg manitoba r2m 2z1 phone 204 772-6979 email office@celiac.mb.ca website www.celiac.mb.ca 7 9 11 15 17 president s message news notes kids talk upcoming events restaurant remarks brewers get exemption from allergy label rules glutenfree at fairmont food product info new rules expand allergy labels on food 17 in the news ottawa conference 19 20 recipes contacts connections 5[close]
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www.celiac.mb.ca president s message hello fellow celiacs as i write this on a beautiful bright sunny morning with balmy well balmy for manitoba in february temperatures celiacs across the susan finlay country are celebratpresident ing the federal health manitoba chapter minister s lo ngawaited announcement about the changes to the food labeling laws in canada it wouldn t have happened without lots of grass root support the resulting media coverage across the country has raised the profile of celiac disease remember that together we do make a difference and speaking of ottawa make plans to attend celiacs in ottawa a capital conference may 13-15 the national conference there will be building on the great job all of you did with our conference here last year keynote speaker will be dr daniel leffler a respected physician expert in celiac disease he and melinda dennis a dietitian with celiac disease have recently released their book real life with celiac disease besides all the great gluten free eating and celiac information at the conference ottawa is a beautiful city you really must see the masses of tulips in full bloom at that time of year early bird registration deadline has been extended to april 1 locally here there has been lots of exciting news too delta hotels called to ask for help in preparing gluten free menus for their restaurants iva yeo has agreed to work with the hotel on behalf of the chapter the manitoba pharmaceutical association asked for someone to speak on celiac disease at their provincial conference in april our capable dr jocelyn silvester will be taking on that task the manitoba chapter will also have a booth at the pharmacy conference hopefully none of us will need to go into hospital but if you do it s nice to know that the winnipeg regional health authority s nutrition and food services has just added assorted gluten free sandwiches and gluten free raspberry cookies to their menu let s not forget about rural manitoba either grandview the other side of dauphin has invited the chapter s participation in its upcoming health fair the home economics teachers are having a conference in may and have asked for someone to do a half-day session on celiac disease and the gluten free diet more exciting news is that a camp in the whiteshell is looking at accommodating 9-11 year old celiacs this summer eating gluten free has been a huge challenge for celiac kids these are very positive steps heather yeo has embarked on the first of the chapter s traveling road shows she and a group of volunteers will be visiting rural communities to provide celiac disease/gluten free diet information sessions for the general public the first one will be in portage la prairie you know your community is there a spot at your local church or school or hospital where a similar event could be arranged i recently attended a gardening conference i was really impressed with the way the conference organizers and the caterer addressed my gluten free diet as well as other special diets the gluten free food was clearly labeled as such covered with saran to prevent cross-contamination and served on a different table from the other food one of the meals was a beef stew the caterer had made a special effort to buy potato flour to thicken the crockpot of gluten free stew she had made a gluten free dessert specifically for the celiacs too it turns out that she has a family member with a severe food allergy it s unfortunate about the family member but what a blessing for the celiac at the conference ktkatering did a great job did you know that chatelaine is now identifying one of their recipes each month as gluten free how did this happen someone wrote to chatelaine and asked isn t it amazing what can happen if one speaks up january s recipe was sweet and spicy scallops with bok choy february s was ham cheese frittata looking at the other recipes in these issues lots of the other recipes were also gluten free but just think of the recognition this has brought we are getting to be mainstream the chapter s annual general meeting will be on april 2 please think about 7 celi-yak spring 2011 taking on a role for the chapter i have been president for a long time and it is time for someone else to take over in addition the chapter needs people to care for this year s art for awareness sculpture raffle help sandra wolch with children s events assist nancy moffat with newly diagnosed sessions and many other specific tasks during the year we have had some transition in our volunteer force susanne leslie stepped down as treasurer at the end of our fiscal year november 30 marcia tait has re-assumed that role monique clement has passed the walkathon torch to gavin and elaine reid mark your calendars now for the walkathon at kildonan park on june 4 we ve never been rained out yet kelly sullivan is passing the reins of the website to thomas wels colleen watson is the chapter s new membership person the chapter does need your accurate email phone number and mailing address to ensure you get information in a timely fashion thanks to all those hardworking volunteers who have moved on as well as those who are continuing to serve the chapter welcome to those who are new or renewed in their volunteer capacities i look forward to seeing all of you at the april 2 annual general meeting/dessert party as april is tax month our guest speaker for that date will be addressing the financial issues of celiac disease susan finlay president pancake brunch thank you to our volunteer pancake and sausage cookers they were:cliff and grace patzer yvonne pregley and her 2 friends ellen frovich and andrea piotrowski carolyn penner and her son christopher anne penner and al pirch thank you to our donors freybe foods for the sausages and kinnikinnick for the pancake mix[close]
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www.celiac.mb.ca news notes ottawa conference celiacs in ottawa a capital conference may 13-15 2011 ottawa ontario with so many members and non members on vacation with the busy life style we lead the ottawa conference committee have extended the early bird date for registration to april 2 2011 please pass the word along to all your members and friends thank you hope to see you and other members of your group at the conference a letter to janet daizel president of the canadian celiac association congratulations on your latest concerns rightfully so regarding labeling on food liquids medications containers it is essential that individuals with celiac disease have every opportunity to know the contents of the variety of packaged products my only concern is that with the additional wording that would be necessary many would be unable to read the notations due to the increase in wording i am already having difficulty with the smaller packages especially even with the use of magnifying tools the medication aleve has a fold-out label which is readable as do some others when creating new labels it is absolutely essential that the ability to read the information is taken into consideration and every attempt to design legible information in 1989 i proposed a private members bill in the manitoba legislature after having great difficulty with understanding of contents while shopping for instance cans would include labels with soy sauce malt vinegar beans italian sausages etc only those descriptions without ingredients when i was first diagnosed in 1974 it was very very difficult to comply with the needs of an individual on an essential gluten free diet only after the bill was debated the caucus secretary told me they had never received so many responses from north america and the u.k now that more has been researched with subsequent information to follow it is celi-yak spring 2011 indeed essential that we pursue this next step aggressively janet i enjoyed your short but succinct comment re the problem you might have should you unknowingly ingest gluten keep up the good work sincerely iva j yeo red river college gf baking class kid talk kids program hello everyone the manitoba chapter would like to start a kids program and schedule fun events for children with celiac disease the intent is to make these familyfriendly events to include parents and nonceliac siblings that are fun for everyone spring is just around the corner so think of both indoors and outdoors if you re interested in joining the kids group activities or know a celiac child please contact swolch@mts.net with the child s name age and gender and contact information thanks susan camp nutimik camp nutimik is happy to announce that we will be offering a week of summer camp this year where we specifically aim to accommodate those on a gluten free dairy free option i have attached a pdf of our summer brochure which is also available at www.campnutimik.com and you will see it listed in the classic camp section our on-line registration has been delayed but there are registration forms available online for mail in registrations as well i hope you are able to pass this information on to your members and would love for someone in your organization to contact me ot confirm reception of this information and indicate what will happen with it also if you have other suggestions of how to get this info out to parents we would appreciate it very much sonya kilmartin camp nutimik program director sonya@campnutimik.com phone 204 348-2551 may to august cell 204345-3313 home 204 268-4756 diagnosing celic in kids celiac.com 02/15/2010 just five simple questions can help you determine if your child needs a glutenfree diet according to the a recent danish study that aims to improve celiac disease diagnosis in children a simple blood test can tell doctors which kids most likely have celiac disease but doing a blood test on every child is simply not practical would it be better to 9 test just the kids who show one or more symptoms common to celiac disease to answer that question doctor peter toftedal md of denmark s odense university hospital created a simple five item questionnaire to help parents provide information on recurrent abdominal pain chronic diarrhea constipation and lack of height and weight gain 1 has your child ever suffered from abdominal pain more than twice during the last three months 2 has your child ever had diarrhea lasting more than two weeks 3 does your child have a tendency to firm and hard stools 4 does your child gain enough weight 5 does your child gain enough height?[close]
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celi-yak spring 2011 europe vacation experience gerry and i took a river cruise on the rhine and mosel rivers through france germany switzerland and amsterdam for 16 days the end of september we booked through jerry van dyke travel from cambridge ontario there were only 92 people on board the attention to detail by the chef and everyone else regarding my gluten free diet was superb they ran out of gf bread with only two days left of the cruise they made a special trip off the ship to get me some also i asked if they had any gluten free cookies early in the trip to snack on with tea in the afternoon again they went out of their way to get them for me also like you i had better meals on the airplane than did others we flew lufthansa cheers for now lorraine cruise talk hi jennifer since listening to your talk on saturday and visiting with other people at the meeting after i thought of a few things you could possibly do to make your tours more celiac friendly buffets are always a major problem for celiacs because of cross contamination i know when i cruise they recommend i never eat at the buffet but always at the dining room so that they can control what i eat if buffets are the only option then always let the celiacs go first or arrange that their breakfast be plated eating at family homes visiting farms etc would also be a minefield for cross contamination celiacs use separate preparation dishes measuring cups pans and use isolated areas in our home kitchen for preparation we have our own toasters peanut butter jars jam jars and so on i m not sure how you could remedy this situation but i for one would not be happy eating there hopefully you can use this information to make your tours more celiac friendly thanks again for your presentation heather yeo urgently needed grocery card coordinators responsibilities include · maintain records of grocery card inventory sales and receipts · distribute grocery cards to members at chapter meetings five times per year and upon request www.celiac.mb.ca art for awareness coordinators responsibilities include · coordinate annual art for awareness fundraiser ie printing and distributing tickets advertising keeping track of receipts of monies and the actual draw president co-presedent vice president responsibilities include · maintaining current knowledge about celiac disease and dermatitis herpetiformis · overall coordination of the manitoba chapter under the umbrella of the canadian celiac association · working with volunteers within the organization on a variety of awareness and education projects · liaison with professional groups the food and restaurant industry and the media as needed · maintaining basic computer literacy primarily for email 10[close]
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www.celiac.mb.ca upcoming events chapter meetings meeting location st anne ukrainian catholic church 455 douglas avenue north kildonan meeting dates saturday april 2nd at 9:15 am just before the regular meeting but in the side room in the basement at the church will be an information session for newly diagnosed celiacs and their families everyone is welcome to attend this session at no charge please call 772-6979 to register saturday april 2nd at 11am-1pm manitoba chapter annual general meeting gluten free potluck dessert party as it s income tax season we have asked a representative from revenue canada to address the tax implications of having celiac disease as our guest speaker please bring a list of ingredients or better yet the whole recipe for your dessert so those who have other food sensitivities dairy products nuts etc will know what they can and can t eat sunday april 17th sunday april 17 will be our first big celiac kids event spread the word to any celiac kids you know at least one parent guardian is asked to attend the event with his/her child please sandra at wolch@mts.net for more details about the pizza and bowling bash annual celiac walk-a-thon saturday june 4th 2011 kildonan park 2021 main street registration 9:45 a.m walk start time 10:00 a.m bar-b-que and general meeting to follow the walk note gf lifestyle meetings are held for people who are newly diagnosed and interested in more information on living glutenfree meeting dates and times are somewhat flexible and are held dependent on the need for further information please call 7726979 and leave a message your phone call will be returned as soon as possible celi-yak spring 2011 healthy eating tour safeway is sponsoring a healthy eating tour for people with diabetes 2 hour guided tour of the grocery store with a registered dietitian do you want to make healthier choices in the foods you prepare at mealtime learn the difference between saturated fat trans fat low fat and much more find out how to make healthier food choices and read labels with confidence this would probably benefit all of us whether or not we have diabetes call the individual stores to register for the date location that suits you best ness madison safeway monday march 14 6:30-8:30 pm 775-2414 jefferson mcphillips safeway tuesday march 15 6:30-8:30 pm 6941829 crestview safeway monday march 21 6:30-8:30 pm 888-5600 restaurant remarks ucts jonnies sticky buns 941 portage ave i ll have to get there to try it i contacted jonnies to inquire of their menu for sticky-buns they have one sticky-bun on the menu called gluten free which is described as vegan and organic and contains quinoa tapioca cornstarch and corn meal it is currently priced at $2.85 ron webster from cake-ology in the exchange and my their website is girlfriends thought it was amazing very moist and absolutely delish the decorat http www.jonniesstickybuns.com ing was outstanding fabulous fondant icing detail i think it was better tasting than their `normal cakes according to my sources can do many different flavours see the link to their cute website http www.cake-ology.ca prices of the cakes are also great considering how detailed they are from barb.dufour@sobeys.com hi i was going through the restaurant tab on the website and noticed hu s asian bistro has a second location 1747 ellice avenue winnipeg mb r3h 1a6 204 779-7041 they have a very appealing variety on their menu that is gluten-free it is not a separate menu it states beside each dish if it is gf or not hu s asian bistro is open on the weekends we were there on a saturday afternoon and had lunch in the bar i had a very taste entre and would definitely reci haven t been yet but a friend just ommend this location as a safe dine out told me there s a new bakery just opened option i just ordered myself a birthday cake on portage ave that sells gluten free prod11 have heard boon burger on stradbrook is a great vegan organic and gluten free burger restaurant that actually has gluten free burger buns will go there this weekend and report back to you juanita van norman[close]
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celi-yak spring 2011 www.celiac.mb.ca p for gn u s at si ap om a sn gpulses.c pe okin estco ction ww.b ipe se w e rec in th 12[close]
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celi-yak spring 2011 www.celiac.mb.ca c.c.a national board nomination period extended do you know a member who has marketing educational financial skills have they played a role at the chapter or national level could they make a valuable contribution to the future success of the cca if so submit their name as a candidate to join the cca national board any `current member may nominate a member for the position on the national executive the positions of `president `executive vice president and `vice president are open for nomination for 20112013 any `current member from within these regions can nominate a candidate for the region the positions of regional director for `alberta edmonton and calgary chapters `northeastern ontario belleville/quinte kingston peterborough ottawa sudbury thunder bay district chapters `central ontario toronto chapter and `atlantic fredericton halifax moncton pei saint john st john s chapters are open for nomination for 2011-2013 who can be nominated any member 18 years of age or older who has served on the executive of a member chapter for at least one year may be nominated to a position on the national executive or as a regional director to be nominated for president the candidate must have served at least one year on the national board aims of the c.c.a people with celiac disease dermatitis herpetiformis and gluten intolerance in canada are served by local chapters across the country which united form a national body called the canadian celiac association this association is incorporated under the canada corporations act and is a registered charity with the canada revenue agency the purpose of the canadian celiac association is to assist its affiliated chapters and to represent their members needs on a national level which include 14[close]
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www.celiac.mb.ca brewers get exemption from allergy label rules gloria galloway/globe and mail the federal government is demanding that canada s food and beverage manufacturers provide labels that do not mask ingredients which threaten the health and occasionally the lives of people suffering from food allergies but health minister leona aglukkaq who introduced the new packaging requirements monday gave brewers a temporary exemption from the regulations saying she will first consult with other countries which have introduced similar labeling rules the decision pleased the beer-makers who say some smaller breweries would have had to spend millions of dollars to replace their painted bottles to conform with the new rules they also say every beer drinker knows what s in beer prior to ms aglukkaq s announcement food allergy sufferers were afraid that the objections of the beer industry would derail the entire re-labeling initiative which had been many years in the making our intent was never to hold up the entire regulations said andré fortin a spokesman for the brewers association of canada so we re happy that health canada decided to go ahead with them we re also pleased with the decision to take into account the particular situation for beer the beer labels are of particular interest to people suffering from celiac disease whose intestines cannot handle the gluten contained in such grains as barley wheat and rye we are very disappointed by the last-minute decision of the government to pull the regulations for the beer said laurie harada of anaphylaxis canada which represents people with food allergies the government should move quickly to figure out what it will do about beer labels she said they can t give us any idea of the process or the dates right now so i would still be asking the question how are you going to deal with this but ms harada said she is extremely pleased that the government will proceed with the bulk of the new regulations it will certainly help to protect a number of people she said allergy sufferers say existing foodlabeling requirements often leave them puzzled about what is in the products on their grocery-store shelves margarine may contain milk that is not indicated on package labels egg can be listed as albumin seasonings may mean sesame seeds and there are many other ways that potential allergens can hide the revised regulations will require that manufacturers clearly identify food allergens gluten sources and sulphites either in the list of ingredients or at the end of the list of ingredients in addition an allergen or gluten source must be written in commonly used words such as milk or wheat it is estimated that 5 to 6 per cent of young children and 3 to 4 per cent of adults suffer from food allergies nearly 1 per cent of the population is affected by celiac disease for them the consumption of foods containing gluten can lead to long-term complications because of the complexity of the changes and the shelf life of foods the food industry has been given until aug 4 2012 to comply with the new regulations beer contains wheat or barley which inflames the conditions of celiac disease the beer-makers argue some of the smaller breweries have spent millions of dollars on painted bottles that would have to be replaced if they must be updated to include an ingredients list they also say every beer drinker knows what is in beer but the societies that represent celiac sufferers and people with food allergies are disappointed by the exemption and say all food and beverages should have proper labels the dispute had threatened to kill the whole re-labeling initiative which has been many years in the works the government instead has opted to proceed with most of the changes to make existing labels more clear and deal with the beer industry at a later date currently margarine may contain milk that is not indicated egg can be listed as albumin seasonings may mean sesame seeds and there are many other ways that potential allergens can hide the revised regulations will require that manufacturers clearly identify food allergens gluten sources and sulphites either in the list of ingredients or at the end of the list of ingredients in addition an allergen or gluten source must be written in commonly used words such as milk or wheat 15 celi-yak spring 2011 it is estimated that about 5 per cent to 6 per cent of young children and 3 per cent to 4 per cent of adults suffer from food allergies nearly 1 per cent of the population is affected by celiac disease for whom the consumption of foods containing gluten can lead to long-term complications because of the complexity of the changes and the shelf life of foods industry has been given 18 months to implement the new labeling regulations the cominginto-force date is set for august 4 2012 gluten free at fairmont the chocolate ganache flan is a hit with our gluten-intolerant tester fairmont hotels introduced healthconscious breakfast lunch and dinner items to suit the needs of customers with gluten-free vegan hypertension and diabetic diets think vietnamese vegetable summer rolls with spicy nuoc cham braised pork belly and vegetable fried rice with spicy pineapple and lychee dacquoise with mango curd on the menu at the fairmont pittsburgh every fairmont hotel meets each of the dietary demands throughout the day with offerings specific to that region s flavors and seasonal availability chefs use a computer program to evaluate ingredients to determine if each meets a particular diet s specific needs our gluten-intolerant tester especially liked the vegan gluten-free chocolate ganache flan with berries and a nut and cherry and honey sorbet with thyme from the fairmont royal york the apiary is on the roof and the bison tenderloin with turmeric mustard-seed chutney by chef felix pfister at chateau lake louise the new menus are a tasty success no matter your dietary concerns but you do have to request the special offerings and we have been assured that even the natural flavoring in the fairmont teas are all gluten-free bon appetit sarah macwhirter[close]
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